Penn FTD Center

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Penn FTD Center The Penn FTD Center is home to an energetic team dedicated to the investigation and treatment of FTD

The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions. Our Center members include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all targeting a cure for Frontotemporal degeneration . Intellectual diversity, creativity and strong collaborative partnerships uniquely position the Penn Frontotemporal Degeneration Center to deliver the highest quality of care to our patients, conduct translational research to improve diagnostic and prognostic accuracy, improve understanding of the biological basis of Frontotemporal degeneration spectrum disorders, and train the next generation of physicians and researchers as we move toward a cure.

See UnRavelled make its East Coast Premiere at Penn Live Arts! “An exquisite example of epic theatre” (Colorado Boulevar...
10/06/2026

See UnRavelled make its East Coast Premiere at Penn Live Arts!

“An exquisite example of epic theatre” (Colorado Boulevard), UnRavelled follows scientist-turned-painter Anne Adams and composer Maurice Ravel, both affected by frontotemporal dementia. As Anne's life unravels, her art flourishes, revealing a surprising link between neurological disease and creativity.

Performances begin October 9, 2026. Tickets/Info: bit.ly/UnRavelledPHL

We understand that care management can be tough. At the Penn FTD Center, we are committed to provide practical, useful t...
10/05/2026

We understand that care management can be tough. At the Penn FTD Center, we are committed to provide practical, useful tips for care management.

The first Monday of every month, we will be sharing tips on care management for those living with FTD. This October, we are sharing tips to consider when starting or resuming a routine.

📍Check out our website for more information on Support & Resources

The Penn FTD Center joined The Association for Frontotemporal Degeneration for the Walk for FTD on Sunday, October 4th i...
10/05/2026

The Penn FTD Center joined The Association for Frontotemporal Degeneration for the Walk for FTD on Sunday, October 4th in the Philadelphia area to provide resources and information to attendees!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
📱 Follow up on all social platforms to stay up to date.

10/02/2026

In honor of FTD Awareness Week 2026, we are putting care partners in the spotlight. From our Co-Director Lauren Massimo, PhD, CRNP, FAAN, we want recognize the support and hard work of all care partners.

Visit our website to get more information on FTD Awareness Week!

10/01/2026

In honor of FTD Awareness Week 2026, we are putting researchers in the spotlight. From our Co-Director Corey McMillan, PhD, we want thank those who dedicate their careers to studying FTD.

Visit our website to get more information on FTD Awareness Week!

09/29/2026

In honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research.

Visit our website to get more information on FTD Awareness Week!

09/28/2026

In honor of FTD Awareness Week 2026, we are putting patients in the spotlight. From our Co-Director David Irwin, MD, we want to acknowledge the determination and perseverance of patients and the inspiration you bring to providers to bring us closer to a cure for FTD.

Visit our website to get more information on FTD Awareness Week!

FTD Fact Friday: The most common genetic cause of FTLD-TDP is a mutation in the non-coding region of the C9orf72 gene. 📍...
09/25/2026

FTD Fact Friday: The most common genetic cause of FTLD-TDP is a mutation in the non-coding region of the C9orf72 gene.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

FTD Fact Friday: In most cases, the cause of FTD is unknown. Individuals with a family history of FTD are more likely to...
09/18/2026

FTD Fact Friday: In most cases, the cause of FTD is unknown. Individuals with a family history of FTD are more likely to develop FTD.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

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Philadelphia, PA
19104

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