Victory 4 Vincent

Victory 4 Vincent Vincent was diagnosed with ATRT (brain cancer) at 4 months old. He beat it 3 times. Then he beat T-cell Lymphoblastic Lymphoma too. He's a miracle.

Born to love, forced to fight. This is our family's story of fighting for his life every single day. As an Amazon Associate I earn from qualifying purchases.

Vincent loves vehicles, especially "big, heavy, strong vehicles" (as he calls them) like : recycling trucks, cement mixe...
07/27/2026

Vincent loves vehicles, especially "big, heavy, strong vehicles" (as he calls them) like : recycling trucks, cement mixers, buses, tow trucks, fire trucks, excavators, delivery trucks, bulldozers, and more that I don't know the names of but he does. He has a UPS delivery truck that he received as a gift, it has it's own forklift and driver and he plays with it all the time.

As we were pulling in the driveway after school on Friday he saw a UPS truck across the street and wanted to get out to see it but it was driving away before I got him unbuckled and out. We came inside and a few minutes later we saw the UPS truck out front and showed Vincent out the window and he wanted to go see it. He wanted his "baby delivery vehicle" to go see the "big delivery vehicle. We took him outside to see it from the sidewalk and as we were looking at it the driver came back and saw us and Vincent's UPS truck. He invited Vincent to come take a look inside and Vincent was so excited to climb up and see inside. He couldn't stop looking back and forth between his truck and the big truck. The driver was so kind and we really appreciate that he took a few minutes out of his day to make Vincent's day.

Also, before I get any comments on this, I will say that if Ramin was not there with us to take him in the truck I would not have taken him in the truck myself.

Yesterday I dropped Mina at the gym and realized that Ryan's Rise Up Cafe was 5 minutes away so I decided to check it ou...
07/24/2026

Yesterday I dropped Mina at the gym and realized that Ryan's Rise Up Cafe was 5 minutes away so I decided to check it out. I have been wanting to go since it opened, but it's about 25 minutes from our house and I hadn't had a chance to get there yet. But, I am so glad I went yesterday.

I walked in and immediately recognized a young women working behind the counter and my entire day was made. Brianna has been living with a brain tumor since she was born. Her mom is one of the veteran brain tumor moms who reached out to me early in Vincent’s diagnosis. I've never met Brianna in person, but I have followed her mom's posts for the past 8 years. I said hi and told her I knew her mom and we started talking. She remembered her mom talking about Vincent and asked to see a photo of him. We had a great conversation and I asked if we could take a photo together that I could send to her mom and she loved the idea. So we snapped a photo right before she handed me my latte and I left with my heart feeling so full that I had tears in my eyes walking to my car.

Being a parent to a child with intellectual and physical disabilities in a society that views a person's value based on their job title or what they can do, is SCARY. Everyone wants to be a part of something, to contribute, to belong, to be loved for who they are, but for many disabled individuals opportunities for inclusion end when they outgrow the education system. I worry about what will happen if Vincent gets to become an adult. What opportunities will there be for him to find dignity and a sense of belonging and purpose? Families like Ryan's are creating the opportunities I hope are in Vincent’s future.

I will definitely be back soon because not only do I love what they are doing for the community, but it was honestly the best caramel latte I have had in a long time. And, I consider myself a chocolate chip cookie connoisseur and their chocolate chip cookie is worth a 25 minute drive. If you live near Glen Mills, please check them out. There is plenty of parking and seating, including outdoor seating.

From their website:
"Inspired by Ryan. Powered by Purpose. Built for Community.
Ryan's Rise Up Café was born from a simple idea: when given opportunity, people rise. After graduation, Ryan, like many young adults plan like him, faced limited paths toward meaningful work. We knew our community could do more.
So we created a place where ability is celebrated, and purpose is shared. Through hands-on job training and real employment, we provide dignified, meaningful work that aligns individual strengths with impactful roles, ensuring each team member is seen for who they truly are.
We strive to transform community perceptions by showcasing the talents and contributions of our diverse team, inviting every guest to be part of shifting the narrative around disability."

Vincent went on a class trip to see the Wizard of Oz! I'm so grateful his school and teacher provide these experiences ❤...
07/23/2026

Vincent went on a class trip to see the Wizard of Oz!

I'm so grateful his school and teacher provide these experiences ❤️

We ran into Vincent's liquid oncologist at the MLB All Star Futures game yesterday. I usually talk about our neuro-oncol...
07/13/2026

We ran into Vincent's liquid oncologist at the MLB All Star Futures game yesterday. I usually talk about our neuro-oncologist because he's been with us since Vincent was 4 months old and most of his side effects are related to his brain cancer so he's Vincent's primary oncologist. But, Dr. Susan Rheingold is incredible in her own right. When Vincent was diagnosed with lymphoma the oncologist that was on service basically told us he wouldn't survive it, he had too much chemo, his body couldn't handle more. We asked our neuro-oncologist to ask Dr. Rheingold to take Vincent on as a patient because she is brilliant and thinks outside the box. She's the director of the oncology clinic and the Institutional Principal Investigator for Children's Oncology Group Clinical Trials. She said yes, and we are so grateful!

We are participating in the CHOP Parkway Run for our 9th year. We raise money for CHOP'S Cancer Center because they never gave up on Vincent and gave us hope. The statistics said Vincent had 11 months to live, CHOP gave us 8 years!

Please join our team or make a donation to help us find cures for pediatric cancer.

https://chop.donordrive.com/teams/Team-VincentTheConqueror

Vincent loves water play Wednesdays at summer school!!
07/13/2026

Vincent loves water play Wednesdays at summer school!!

07/07/2026

This family is from my community (Delco) and their daughter, Sonya, was diagnosed with DIPG last week. They need a miracle.

Please send your love, light, and good vibes to Sonya and her family. And pray, pray, pray for her miracle here on Earth.

FU Cancer. Stay away from our children!!!

07/04/2026

Vincent went on a bear hunt last week. 🐻

He loves his binoculars.

Vincent loves to play "upside down" so I am sure he had a blast a few weeks ago at his end of year party!
07/03/2026

Vincent loves to play "upside down" so I am sure he had a blast a few weeks ago at his end of year party!

I hate that Vincent has spent the majority of his life indoors because of his cancer and its side effects. I have starte...
07/03/2026

I hate that Vincent has spent the majority of his life indoors because of his cancer and its side effects. I have started off the past few summers hopeful that our summer days would be filled with outdoor fun and going to the pool, like they were when Mina was little, but the summer ends and the reality is usually that we never even made it to the pool and we had to stay inside almost every day.

This year, though, Vincent has spent more time outside over the past 3 weeks than I think he has ever spent outside during a whole summer! He's been playing outside in a little pool on our deck almost every day. It's so simple but being able to sit outside on my deck while Vincent plays is a dream come true.

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In sickness and in health takes on a completely different meaning when you have a medically complex child. It's easy to ...
06/21/2026

In sickness and in health takes on a completely different meaning when you have a medically complex child.

It's easy to show up in life for the good times, but it's even easier to walk away when you're living a nightmare.

Ramin has never left the hospital for even one night. He would leave to coach Mina's soccer or softball team, then shower and come right back. He always shows up for his kids.

The best thing I did for my kids was choosing Ramin to be their dad.

Happy Father's Day to the Big Cheese, as Mina currently calls him. We love you.

And Happy Father's Day to all the dad's who show up for their kids no matter what.

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P. O. Box 250
Prospect Park, PA
19076

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