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Aplastic Anemia and MDS International Foundation

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Aplastic Anemia and MDS International Foundation

Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH
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The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

08/03/2026

Last Chance to Register!
You won't want to miss this webinar, for any bone marrow failure patient eligible for a transplant. Register now: https://www.aamds.org/webinar/transplant-associated-thrombotic-microangiopathy-ta-tma

08/02/2026

For those with PNH (Paroxysmal Nocturnal Hemoglobinuria}:
This patient-reported outcomes study will guide upcoming treatments! Patients' real-life responses are important. By sharing your experiences with PNH, you will help other patients through the analysis of this study's data.
You can make a real difference for future patients with PNH.

Find out more here: https://www.aamds.org/treatments/clinical-trials/pledge-patients-long-term-experience-voydeya-danicopan-gathering-evidence

-with-PNH

08/01/2026

Tregzi was recently approved by the US FDA. Amandeep Salhotra, MD, explains how it is used for blood cancer patients undergoing stem cell transplant. Learn about its use, side effects and success in this episode: https://www.aamds.org/podcast/dr-amandeep-salhotra-explains-tregzi-fda-approved-therapy

07/31/2026

What's the latest Quality of Life research for patients with MDS?

Dr. Namrata Chandhok reviews the highlights of the 2026 International Bone Marrow Failure Disease Scientific Symposium session, including how quality of life in MDS can be measured, ways to improve psychological well-being for MDS patients, and the importance of palliative care. Watch: https://youtu.be/V-fG4uqwinM

07/30/2026

Register today for Virtual Support Groups! 🩸
Find others with your disease---to chat, to encourage, or to be encouraged!

Anyone affected by Aplastic Anemia, MDS, or PNH is welcome to attend these disease-focused groups. There's a special group for parents of pediatric patients as well. Attend from anywhere you can Zoom!
Register/find more information: https://ow.ly/BBA850ZupKZ

PS: We're cheering for you!

07/29/2026

When Kelsey's bloodwork came back, her platelets measured at 1. More testing, then the diagnosis: Severe Aplastic Anemia.
She became platelet refractory after a week of transfusions. Then, a brain bleed.
Terrified, she prayed. The next day, 3 donors had been found for her transplant, so she and her family started the 900-mile journey to the transplant center.
Read Kelsey's journey to survivorship:https://www.aamds.org/patient-chronicles/kelsey-proutey

07/28/2026

What's new in research for Aplastic Anemia and PNH?

Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment for Aplastic Anemia and PNH.
The studies were presented at the American Society of Hematology (ASH) 2025 meeting. https://www.aamds.org/share/webinar/2626

If you have Aplastic Anemia or PNH, or if you help care for a patient with SAA or PNH, watch this recording to understand which research may affect the future for patients.

07/27/2026

Are you a patient who has experienced iron overload?
What causes this condition?
Why does it happen to patients with Aplastic Anemia, MDS, or PNH?
Find answers to these questions and more in this recent webinar recording! Watch now: https://www.aamds.org/share/webinar/722

07/26/2026

Dealing with PNH is a long-term journey.
Judy recently shared her story with Patient and Family Conference attendees, giving hope as she described both challenges and joys.
Listen and watch her real-life story here: https://www.aamds.org/share/webinar/769

07/25/2026

Brian has been through it all with MDS--- first Low Risk, then High Risk and Transplant, and now Survivorship!
Listen to him explain how he "kept his chin up" through all of this in this podcast episode: https://www.aamds.org/podcast/brian-anderson-explains-life-treatment-and-surviving-mds or listen on your favorite podcast app at AAMDSIF Podcast for Patients

Address

401 N Washington Street, Ste 430
Rockville, MD
20850

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

https://www.aamds.org/donate

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