FIA - Foundation for Inherited Arrhythmias

08/12/2026

Dr. Ackerman with the big reveal ... we're now FIA!

Building on 35 years of support, science and community, this name reflects who we are and where we are headed. Still here for families experiencing loss, still focused on awareness and saving lives, and more committed than ever to the research and partnerships that make thriving possible.

Because at the heart of everything we do is the same promise: when you come to us at a frightening moment, we offer hope, direction, and community so you feel less alone and more in control. ❤️

Read more at https://www.fiacardiac.org/updates/sads-is-now-fia.

08/12/2026

It's official - we're now FIA (Foundation for Inherited Arrhythmias)! Hear our president, Dr. Michael Ackerman, discuss the new name.

While our name is new, our commitment to families affected by genetic heart conditions is the same as it's always been. Here's to the next chapter – and we hope you'll help us shape it. 💙

You can read more about our rebrand and hear Dr. Ackerman's full video at our new website: https://www.fiacardiac.org/updates/sads-is-now-fia.

08/11/2026

Our webinar, "Mental Health with Inherited Arrhythmias: Managing Fear, Uncertainty, and Doubt" is happening now! Join us here:

08/11/2026

Today it's official: SADS is now FIA, the Foundation for Inherited Arrhythmias, and alongside the new name, we've launched a new home online at fiacardiac.org. 🥳❤️🧬🎉

Our new name represents the full spectrum of people’s experiences living with these conditions. Our story began with families who lost a loved one, and our commitment to support these families and save lives before another tragedy strikes will always be central to our Foundation. Thanks to scientific advancements, these conditions are also increasingly treatable and a growing portion of our community are able to live and thrive beyond their diagnosis. Whatever chapter you’re in, that’s the story we want you to see reflected here.

Our new website reflects all of this too. It’s easier to navigate and full of resources by gene and condition, guidance for newly diagnosed families, ways to connect with others who understand, and more. Take a look at fiacardiac.org.

P.S. This new name exists because of you. It came from years of conversations, feedback, and honest input from families and clinicians across our community. Keep sharing your thoughts - they will shape where we go next!

FIA supports families, educates healthcare professionals, and advances research and care for people affected by inherited heart rhythm conditions.

08/11/2026

Got questions? Dr. Ackerman has answers. � Join us live this next Tuesday at 12:20 pm EST!
� What: A live Q&A with Dr. Michael Ackerman, Mayo Clinic - your questions about inherited arrhythmia conditions, answered in real time
� When: Tuesday, August 11th at 12:20 pm ET
� Where: Live on Facebook, Instagram and YouTube - follow along and drop your questions in the comments

08/08/2026

Mark your calendars! We can't wait to share what we have been working on with our community this coming Tuesday. Follow along so you don't miss the announcement!

08/06/2026

35 years. 80k+ families served. One mission. Drop a ❤️ if you’re ready for what’s next!

08/06/2026

Ever been in a room where everyone understands your condition? You will be.

At the 2026 FIA Family Conference, condition breakouts give you an hour with families who share your diagnosis, including long QT syndrome, Brugada syndrome, CPVT, ACM (also known as ARVC), Timothy syndrome, and more.

Join us November 13–15, Houston. ❤️ Register and learn more at https://sads.org/get-involved/annual-conference/2026-international-family-conference/.

08/05/2026

Join us for a live webinar with cardiac psychologist and expert speaker Dr. Samuel Sears focusing on mental health with inherited arrhythmias.

Dr. Sears will share insights into managing the fear, uncertainty, and doubt that come with living with an inherited arrhythmia including the challenge of living with uncertainty. Dr. Sears will also answer your questions during a dedicated Q&A segment.

Register and learn more at https://sads.org/what-now/living-with-sads-webinars/.

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