FIA - Foundation for Inherited Arrhythmias

FIA - Foundation for Inherited Arrhythmias The SADS Foundation is now FIA (Foundation for Inherited Arrhythmias) 💕🧬 Our vision: Life – unlimited by inherited arrhythmias.

Jackson was just a teenager getting a routine sports physical so he could try out for water polo. He has no symptoms and...
08/18/2026

Jackson was just a teenager getting a routine sports physical so he could try out for water polo. He has no symptoms and felt totally healthy. Then Jackson's EKG came back abnormal. Twice.

The diagnosis: Wolff-Parkinson-White syndrome (WPW), an extra electrical pathway in the heart that can trigger dangerously fast rhythms. It had been framed as a "one percent of one percent" chance, so hearing it confirmed left him stunned.

"I remember my mind racing with a million questions, but really being unable to articulate them, out of pure nerves," he says.

The path forward was a surgery, called an ablation, to eliminate the extra pathway. When he woke up, he got the news he'd been hoping for, first from his mom, then his nurse: a complete success. Four weeks later, he was back in the pool.

Today, Jackson is better than ever. He's still playing water polo, back in the gym, and is grateful for the routine screening that caught what he never knew was there.

Read Jackson's full story at https://www.fiacardiac.org/updates/the-one-percent-of-one-percent-jacksons-wpw-story.

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You may know Erin as the “wizard” behind our webinars and Q&As, or heard her kind voice on the phone when you call our o...
08/18/2026

You may know Erin as the “wizard” behind our webinars and Q&As, or heard her kind voice on the phone when you call our office. Maybe you’ve also met her at one of our conferences. She's been a part of the FIA team for almost ten years, and is our Director of Program Operations here at FIA.

When we asked her about the new FIA name, Erin said "FIA to me means a new beginning, not just in name, but in how we show up for our community. It's a new path that feels tied to who we are and where we're headed".

Whether you're newly diagnosed, have lived with an inherited arrhythmia for years, or came to us after losing someone you love, we want you to know that you belong here. We are still here for you, and we always will be. ❤️

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Meet Martijn – a researcher on Dr. Michael Ackerman's team at Mayo Clinic, a longtime volunteer on our FIA Research Comm...
08/16/2026

Meet Martijn – a researcher on Dr. Michael Ackerman's team at Mayo Clinic, a longtime volunteer on our FIA Research Committee, and a member of our long QT syndrome (LQTS) community himself.

He stands on both sides of inherited arrhythmias: both the science and the personal, lived experience. And when we asked what FIA means to him, he chose three words: community, support, interaction.

That's the heart of what we're building: a place where researchers, clinicians, and families aren't separate groups but one connected community, working toward the same future. ❤️

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Many of you know the wonderful Dr. Susan Etheridge, who's been part of our foundation since nearly the beginning, standi...
08/15/2026

Many of you know the wonderful Dr. Susan Etheridge, who's been part of our foundation since nearly the beginning, standing alongside our founder, Dr. Michael Vincent, through decades of progress in the field of genetic heart rhythm conditions.

Our work is grounded in the expertise of leading clinicians and researchers, like Dr. Etheridge, from medical centers around the world – experts who volunteer their time to weigh in on complex cases, guide families to the right care, and make sure everything we share reflects the most current science. That scientific rigor is what makes FIA a trusted resource for families and clinicians alike, and what helps raise the standard of care across the field.

For Dr. Etheridge, our new name is an extension of that same work: language that matches how clinicians already think and talk, making referrals easier and connections stronger for everyone we serve. ❤️

Learn more at https://www.fiacardiac.org/updates/sads-is-now-fia.

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Take a peek inside the new fiacardiac.org 👀One of our favorite resources on our website is our full resource library — f...
08/15/2026

Take a peek inside the new fiacardiac.org 👀

One of our favorite resources on our website is our full resource library — from genetic testing and med safety to support groups, webinars, and grief support.

Visit fiacardiac.org to explore →

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Decades of science stand behind everything we do.FIA is backed by some of the leading clinicians and researchers in hear...
08/14/2026

Decades of science stand behind everything we do.

FIA is backed by some of the leading clinicians and researchers in heart rhythm conditions - experts from academic medical centers and research institutions around the world who give their time to our board, our medical education work, and our Scientific Advisory Committee.

Their expertise is what lets us connect families to the right care, weigh in on complex cases, and make sure every resource we share reflects the most current science.

Our new name grew from that same expertise. "Inherited arrhythmias" is the language our clinical and research partners already use, and it points to where the field is heading: earlier answers, better treatments, and the research that's moving us towards the possibility of a cure. The hope in our name is grounded in their work.

To every physician, researcher, and genetic counselor who lends their knowledge to this community: thank you. You are the backbone of this foundation, in every sense. ❤️🧬

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Swipe through to see what's new on our website→Condition pages built around your diagnosisA dedicated hub for patients, ...
08/14/2026

Swipe through to see what's new on our website→
Condition pages built around your diagnosis
A dedicated hub for patients, families, healthcare professionals, and researchers
A fresh, easy-to-navigate experience on any device

35 years of trust. A lifetime of support. Same mission, new look.

Visit fiacardiac.org to explore →

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Our new website is here! We're proud to launch fiacardiac.org, the new home for the Foundation for Inherited Arrhythmias...
08/14/2026

Our new website is here! We're proud to launch fiacardiac.org, the new home for the Foundation for Inherited Arrhythmias (formerly the SADS Foundation).

Same mission. Same trusted community. A fresh new look built to help families find answers faster, connect with care, and feel heard.

Explore the new site: fiacardiac.org

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08/13/2026

Meet Genevie, our Director of Family Support and Research. She joined the foundation at 16 – the year she was diagnosed with – and 35 years later, she's still here, and so are we.

The SADS Foundation is now the Foundation for Inherited Arrhythmias (FIA). Everything you love is still here: the same expert-backed family support, the same peer connections and community, the same medical education and resources for clinicians, the same commitment to research and advocacy. This year alone, we're on track to help around 800 families one-on-one through our Family Support program.

This change was inspired and driven by the very community we serve, and it stands on the shoulders of our founders – Dr. G. Michael Vincent, Doris Toran Goldman, Nancy Duitch, and Katherine Timothy.

Whether you're newly diagnosed, have lived with an inherited arrhythmia for years, or came to us after losing someone you love, we want you to know that you belong here. We are still here for you, and we always will be. :heart:

Visit our new home: fiacardiac.org.

Dr. Ackerman with the big reveal ... we're now FIA!Building on 35 years of support, science and community, this name ref...
08/12/2026

Dr. Ackerman with the big reveal ... we're now FIA!

Building on 35 years of support, science and community, this name reflects who we are and where we are headed. Still here for families experiencing loss, still focused on awareness and saving lives, and more committed than ever to the research and partnerships that make thriving possible.

Because at the heart of everything we do is the same promise: when you come to us at a frightening moment, we offer hope, direction, and community so you feel less alone and more in control. ❤️

Read more at https://www.fiacardiac.org/updates/sads-is-now-fia.

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