09/29/2026
Because this community is like a family to me I wanted to update everyone on how my mother is doing. After spending more than 12 hours in the ER she was admitted to the hospital for stomach and kidney issues (not going into extreme detail for her privacy). She was diagnosed with Parkinson’s 8 months ago and it has moved very fast.
I have been by her side pretty 12 hours a day for 3 days to make sure she knows people love and care for her. In the photo is her adopted sister who is 20 years younger than my mother. She will kill me for positing this photo but it’s the best she’s looked in a while.
The hospital food is barely edible and so I’ve brought her food that I’ve made so she can continue to fight. We are in the process of trying to get her all the help at home when she is discharged.
At this time I am her caregiver and make her medical decisions. I am exhausted but I remain calm. I was invited to NASCARR in Denver to attend a conference for XXY and research being funded by the NIH but couldn’t attend because family first.
Please be kind and gentle towards me as I can’t answer peoples emails, phone calls or messages regarding XXY at this time.
Ryan