Jacob's Fighting ATRT Journey

Jacob's Fighting ATRT Journey Welcome to Jacob's Fighting Journey support page. First diagnosis Feb 2024 🩶
Remission Oct 2024 🙏🏻
Relapse Feb 2026 🩶

This page has been created to keep family and friends updated on Jacob's treatment, as well as to raise awareness of ATRT. Esta página de Facebook ha sido creada para mantener a nuestros familiares y amigos informados sobre el tratamiento de Jacob, así como para crear conciencia de ATRT.

Good evening, everyone 🤍It’s been a few days without any update. Truth is we have been enjoying time with family as we a...
06/12/2026

Good evening, everyone 🤍

It’s been a few days without any update. Truth is we have been enjoying time with family as we approach Jacob’s treatment 🙏🏻

Tomorrow is Jacob’s surgery to place an ommaya in his head. This will allow the chemotherapy to be more targeted to his brain and spine 🙏🏻

We humbly ask for prayers as he goes in for surgery tomorrow 🤍

Thank you once again for all the support and love you showed us with 🙏🏻🤍

💛🩶

Buenas noches a todos 🤍

Han pasado algunos días desde la última actualización. La verdad es que hemos estado disfrutando del tiempo con familia antes de iniciar con el tratamiento 🙏🏻

Mañana es la cirugía de Jacob para poner una ommaya en su cabeza, esto permitirá una quimioterapia más focalizada en su cerebro y espalda 🙏🏻

Les pedimos humildemente que nos apoyen orando por el para que todo salga bien mañana 🤍

Muchas gracias de nuevo por todo el amor que nos dan🙏🏻🤍

🎗️

Clear scans and negative lumbar puncture, praise God! 🙏🏻🤍✨No signs of disease!We have discussed next steps with his onco...
05/29/2026

Clear scans and negative lumbar puncture, praise God! 🙏🏻🤍✨

No signs of disease!

We have discussed next steps with his oncologist and chemotherapy will begin at the beginning of July.

💛🩶

Imágenes limpias y resultados de la punción lumbar negativos, alabado sea Dios! 🙏🏻🤍✨

¡No hay evidencia de enfermedad!

Discutimos los siguientes pasos con su oncóloga y la quimioterapia comenzada a principios de Julio.

05/26/2026

Hello everyone! 🤍

Today is MRI day 🙏🏻
We humbly ask you to keep Jacob in your prayers and to pray for clear scans with no evidence of disease 🙏🏻

💛🩶

Hola a todos 🤍
Hoy es día de resonancia magnética 🙏🏻
Les pedimos a todos que mantengan a Jacob en sus oraciones y que oren por buenos resultados sin evidencia de cancer 🙏🏻

🎗️

🤍✨
05/22/2026

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Good evening everyone 🤍Thank you all for your prayers and beautiful wishes for Jacob. We still have not received the res...
05/19/2026

Good evening everyone 🤍

Thank you all for your prayers and beautiful wishes for Jacob.

We still have not received the results for the lumbar puncture and most likely will hear back from them when we have the meeting with the oncology team.

Jacob has been scheduled for an MRI on May 26th and then the 29th we will meet with the team to discuss final details about the treatment 🙏🏻

We humbly beg you keep praying for our sweet boy 🤍

💛🩶

Buenas tardes a todos 🤍

Gracias a todos por sus oraciones y bellos deseos para Jacob.

Aún no recibimos los resultados de la punción lumbar y muy seguramente sabremos de ellos hasta la junta con el equipo de oncología.

Jacob ha sido programado para una resonancia el 26 de mayo y el 29 tendremos una reunión con el equipo para discutir los últimos detalles del tratamiento 🙏🏻

Les pedimos humildemente que sigan orando por nuestro dulce hijo 🤍

🎗️

05/13/2026

Good morning 🤍✨

Today is Jacob’s lumbar puncture and EKG. His port has been accessed and we’re just waiting for his turn to get the procedure done 🙏🏻

Please help us pray for good results. Today’s results + MRI on the 26th will determine how aggressive/mild his chemotherapy will be.

💛🩶

Buenos días 🤍✨

Hoy es la punción lumbar y electrocardiograma de Jacob. Ya han accesado su puerto y estamos en espera de su turno para el procedimiento 🙏🏻

Por favor ayúdennos orando por buenos resultados. Los resultados de hoy + la resonancia magnética del 26 determinarán que tan agresiva/ligera sea su quimioterapia.

Good morning ❤️Jacob had his neurosurgery appointment yesterday. We were able to see Spider-Man in action 🤭 Everything w...
05/05/2026

Good morning ❤️

Jacob had his neurosurgery appointment yesterday. We were able to see Spider-Man in action 🤭

Everything went well at the appointment.

Next steps as of now are a lumbar puncture, an MRI and a meeting with the oncologists. He’ll be scheduled for an Ommaya insertion on the second week of June and will begin chemo at the end of June.

Please keep us in your prayers 🙏🏻

💛🩶

Buenos días ❤️

Jacob tuvo su cita con neurocirugía ayer. Tuvimos la oportunidad de ver al Hombre Araña en acción 🤭

Todo salió bien en la cita.

Los siguientes pasos hasta el momento es una punción lumbar, una resonancia magnética y una reunión con los oncólogos. Será programado para la inserción de un Ommaya en la segunda semana de Junio y comenzará quimio a finales de junio.

Por favor manténgannos en sus oraciones 🙏🏻

Good afternoon🤍🙏🏻It’s been two weeks since Jacob finished radiation. We have been enjoying every single day 🤍He’s doing ...
05/01/2026

Good afternoon🤍🙏🏻

It’s been two weeks since Jacob finished radiation. We have been enjoying every single day 🤍

He’s doing so good, and growing up so fast. He will have a neurosurgery follow up on Monday to see how he’s recovered from his back surgery.

Also, his MRI and lumbar puncture have been scheduled and we humbly ask you to pray for clear results 🙏🏻

Jacob will have a little bit of a break before he begins chemotherapy. We do not know exact dates yet.

Thank you all so much for the incredible support and love you have shown us 🤍🙏🏻

💛🩶

Buenas tardes 🤍🙏🏻

Han pasado dos semanas desde que Jacob terminó radiación y hemos estado disfrutando de cada momento 🤍

Ha estado muy bien y creciendo muy rápido. Tendrá una cita de seguimiento con neurocirugía el lunes para ver qué tal se ha recuperado de la operación de su espalda.

Además, su resonancia magnética y punción lumbar ya han sido programadas, les pedimos que oren por resultados libres de todo mal 🙏🏻

Jacob tendrá un pequeño descanso antes de comenzar con quimioterapia. Aún no sabemos las fechas exactas.

Muchas gracias a todos por sus increíbles muestras de apoyo y amor 🤍🙏🏻

🎗️

Ring that bell, ring that bell 💛🔔🙏🏻
04/17/2026

Ring that bell, ring that bell 💛🔔🙏🏻

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3010 Children's Way
San Diego, CA
92123

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