08/14/2026
Sorry for the time between updates. The hardest thing about this hospital stay has been the lack of sleep. We’ve always said that caring for someone like Mason is similar to having a newborn, in that you only get to sleep when the baby sleeps. Well, the baby isn’t sleeping much! At some point, the lack of sleep starts to really take a toll on you, both physically and mentally.
As for Mason… we still have more questions than answers. Right now, they are taking a close look at his medications and making some adjustments to see if the meds were causing issues. I’m not sure if I mentioned in the last update, but Mason failed his swallow test with all liquids and solids, so he isn’t able to eat or drink anything. Some of his meds are only available in pill form, one of those meds being his main antipsychotic… yeah, probably not the best one to go without for 48 hours.
They placed an NG tube for nutrition the night before last but Mason ended up removing it himself and it has yet to be replaced. The plan was for him to go down for an MRI and THEN have the tube replaced, but we have been waiting for him to be picked up for the MRI for 13 hours now. So that means that he STILL isn’t getting the meds that he needs for mood stabilization.
I don’t see how any progress can be made until he can regularly receive his medications. I wish I had more information to share. Please continue to keep us in your prayers. This has really taken a toll on us and we have no idea how much longer we will be here. Cayde starts school soon so we have that hanging over our heads too. It just feels like too much all at once. Lord have mercy!