All Things Epilepsy by Laura Beretsky

10/21/2026

Oct. 21st is SUDEP Action Day. One in 150 people with uncontrollable seizures die of Sudden Unexpected Death due to Epilepsy per year. SK Life Science took a step in the right direction last week, when they committed a big donation to CURE Epilepsy and the Cameron Boyce Foundation for SUDEP research and outreach support. More on my Substack: https://lberetsky.substack.com/p/sudep-action-day-is-here

09/24/2026

The National Plan for Epilepsies Act is moving along but needs another voter push. Contact your Congressional Representative and urge them to support HR 1189 More info here: https://lberetsky.substack.com/p/keeping-the-national-plan-for-epilepsies

08/19/2026

Ever wonder why epilepsy seems to impair our memory abilities? A recent Johns Hopkins and Kennedy Krieger Institute study clarifies the connection between epileptic brain activity and memory loss. More on my All Things Epilepsy Substack:

Recent study clarifies the connection between epileptic brain activity and memory loss

07/20/2026

Help push the National Plan for Epilepsy Forward: The Senate Committee on Health, Education, Labor and Pensions is reviewing the National Plan for Epilepsy Act this Wednesday, July 22nd. Contact Committee members and urge them to approve the bill. Details on my Substack: https://lberetsky.substack.com/p/lets-make-the-national-plan-for-epilepsy

06/23/2026

A victory lap for refractory pediatric epilepsy treatment! Thanks to the strong patient advocacy, Blue Cross now covers Deep Brain Stimulation treatment for pediatric epilepsy patients.

Insurer covers Deep Brain Stimulation for pediatric refractory epilepsy thanks to strong patient advocacy

05/26/2026

Anti-seizure medication shortages are an issue in the UK, where patients can’t get their full prescriptions filled. Hopefully the U.S. isn’t next. https://lberetsky.substack.com/p/another-war-impact-medication-supply

04/27/2026

Anybody with drug-resistant epilepsy should check out Epilepsy Sparks interview with Dr. Morcos, who discusses his Brain Surgery Decision Map. More on my Substack:

Neurosurgical technology advances make successful surgical treatment of drug-resistant epilepsy more accessible