WashU Med Neurofibromatosis Center

WashU Med Neurofibromatosis Center Healthcare and research organization
St. Louis, MO For your protection, we cannot answer any personal questions about your medical condition via this website.
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The information contained in the Washington University School of Medicine online site (“Site”), and its affiliated Washington University Physicians online site, is solely intended to provide an overview of services offered at Washington University School of Medicine. Information about diseases and medical conditions on this Site and on its linked resources is for educational and informational purposes only and should in no way be taken to be the practice of medicine or the provision of medical, nursing or professional health care advice or services. The information should not be considered complete and should not be used in place of a visit, call, consultation or advice of your physician or other health care provider. The information obtained from this site and any linked resources is not exhaustive and does not cover all diseases, ailments, physical conditions or their treatments. Should you have any specific health care-related questions, please contact or visit your physician or other health care provider promptly. Any links to other Internet websites of non-affiliated external sources does not imply endorsement by Washington University Physicians or Washington University School of Medicine (sometimes referred to in this Privacy Policy as “us,” “we” or “our”) of any products, services or information presented in these external Internet websites, nor do we guarantee the accuracy of the information contained on them. In addition, since we have no control over the privacy practices of linked external Internet websites you should read and understand the policies of all linked external Internet websites with respect to their privacy practices. The Washington University NF Center provides information on free, family-friendly events throughout the St. Louis area for the convenience of our patients and families. As part of this free service, our listing may contain links to external websites not owned by or affiliated with Washington University. The university provides links to third-party websites solely for the convenience of the user. Washington University does not endorse the information, content, products or services provided on any third-party sites linked to university websites. The university is not responsible for the privacy practices or the content of such websites.

Journal time to start out our final day of  ! Journaling is a great way to work on emotional regulation and fine motor c...
08/06/2026

Journal time to start out our final day of ! Journaling is a great way to work on emotional regulation and fine motor coordination. Adding on group sharing can take it one step further to address social skills.

Next up, camp for the 5th-8th graders!
08/05/2026

Next up, camp for the 5th-8th graders!

In honor of Camp NF, we want to introduce you to one of our fabulous staff members. Makenzie Sledd, MPT, is one of the p...
08/04/2026

In honor of Camp NF, we want to introduce you to one of our fabulous staff members. Makenzie Sledd, MPT, is one of the people behind our amazing therapy programs. She had been a physical therapist for over 15 years and has experience treating children with bleeding disorders, orthopedic, and neurological conditions. Makenzie is also a PT working group member for the National Bleeding Disorders Foundation and a chair member of the American Thrombosis and Hemostasis Network PT Community of Practice. Although Makenzie is not part of NF Clinic she is huge part of Club NF, Teen NF, Camp NF, NF Family Day, and THRIVE NF.

Day 2 of Camp NF for our K-4th grade! Ms. Makenzie (PT) is reviewing our schedule for the day.
08/04/2026

Day 2 of Camp NF for our K-4th grade! Ms. Makenzie (PT) is reviewing our schedule for the day.

Let the games begin
08/03/2026

Let the games begin

Dr. Pathak is an Associate Professor of Neurology and Pediatrics. He has worked in the St. Louis area in private neurolo...
07/30/2026

Dr. Pathak is an Associate Professor of Neurology and Pediatrics. He has worked in the St. Louis area in private neurology practice, and as a member of the faculty at Washington University. He has special interest in treating patients with neurodevelopmental disorders, movement disorders, and has experience managing behavioral conditions and disorders of attention. Dr. Pathak sees patients for consultation and follow up in the NF Clinic.

And that’s a wrap on the 4th Annual NF Family Day! Thank you to everyone who attended! We do these events for the NF com...
07/18/2026

And that’s a wrap on the 4th Annual NF Family Day! Thank you to everyone who attended! We do these events for the NF community and love to see the connections made during each event!

Only a few more days to register for NF Family Day! It is a great opportunity to connect with other families affected by...
07/14/2026

Only a few more days to register for NF Family Day! It is a great opportunity to connect with other families affected by NF, learn more, and have some fun!!!

Click here to register >>> https://www.eventcreate.com/e/nf-family-day

Only a few more days to register for NF Family Day! It is a great opportunity to connect with other families affected by...
07/14/2026

Only a few more days to register for NF Family Day! It is a great opportunity to connect with other families affected by NF, learn more, and have some fun!!!

Click here to register >>> https://www.eventcreate.com/e/nf-family-day

Dr. Angela Hirbe, MD, PhD is an Associate Professor of Medicine and Pediatrics in Oncology and Director of the Adult NF ...
07/08/2026

Dr. Angela Hirbe, MD, PhD is an Associate Professor of Medicine and Pediatrics in Oncology and Director of the Adult NF Clinical Program.

Dr. Hirbe sees adult patients with bone and soft tissue sarcomas, other rare tumors, and cancer predisposition syndromes (like NF1). Her lab is focused on genomics and mouse models of soft tissue sarcomas, particularly NF1-associated MPNST, with the goal of identifying drivers that can be exploited as diagnostic biomarkers or therapeutic targets.

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WashU School Of Medicine
St. Louis, MO

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