06/05/2026
🩷When Brian and I were up in Indy for Carb Day and the Indy 500, we came upon “Helen’s Pink Lemonade Stand.” This friendly, adorable young kiddo was handing out lemonade. We took a glass and were starting to learn who Helen was when a young man introduced himself to us as “Dan Born.” As we chatted with him, we learned he was Helen’s dad and he introduced us to his son, George (who handed us our lemonade earlier) and his wife, Stephanie. He shared their family’s story of Helen and her medical challenges that took several years to accurately diagnose. The diagnosis of CLN2 Batten Disease. Explained to us as “ALS in children.” I’m posting the Born’s family story here and sharing their experience and foundation for anyone that feels led to learn more and possibly support their mission. May God continue to support and bless the Born family and others dealing with this tragic diagnosis.💝
www.hope4helen.org