06/09/2026
Today, Aveanna recognizes Batten Disease Awareness Day. This annual observance honors the children and families impacted by the disorder and advocates for further research.
Batten disease is a rare, fatal genetic disorder that affects the brain and nervous system, leading to neurological and mobility challenges over time. The disease affects approximately 14,000 children worldwide. Currently, there is no cure, although recent therapies have appeared to slow progression of the disease.
Today and every day, we stand by families impacted by Batten disease and push for research and education. To learn more about Batten disease, visit https://pulse.ly/b1b1rdr15k