09/08/2026
18 minutes of sleep last night…and then two doctors’ appointments, and one spine scan that wound up being moved to Thursday. Such is the life of a sepsis survivor. All long distance drives and a quick pop in for a virtual Hill Day for . I never want to miss Hill Day with Sepsis Alliance, these, I greatly enjoy♥️. I just crossed my fingers and hoped to sound coherent.
4:28 now and we’re finally home. After leaving around 10. I swear I cannot feel my legs.
Up to 75 % of sepsis survivors suffer from post sepsis syndrome. It’s not an easy fix. And what truly hurts us survivors, is when it feels like some try to downplay the numbers. The stark reality is, every septic shock survivor that I meet, encounters the same challenges as me. Sometimes worse. 😳
I’ve been battling insomnia off and on since my sepsis crisis. Last night was a doozy. In utter frustration I pulled out my phone around 4 and started doom scrolling and drifting off with my thumb on the screen, shooting off a bunch of wackadoo TikToks to both strangers and friends. (If you were one of them, my apologies.)
All that, for 18 minutes of light slumber, according to my Fitbit, which immediately started judging me and my hollow, sleep deprived eyes.
I asked this question of other sepsis survivors on Facebook around the wee hours of dawn - how many sepsis survivors also battle insomnia since almost dying from sepsis? That question was met with a landslide of responses.
It feels like some try to downplay our plight and our symptoms. They don’t ask us, how we should be supported. . Or compare their X, Y and Z condition to ours. Or worse yet, they try to speak for us, taking away the only thing we have left, our voices, to tell our stories, and how we’re feeling. This is most definitely not cool. 😭😭 And it hurts.
If it sounds like I’m having a bad day today, it’s because I am. All while faking it with a goofy, tired smile on my face. I’m definitely exhausted, and NOT okay. 😥
This is the reality for many of us survivors. Sepsis Awareness Month, and all year round.