Parkinson's Disease Alliance of WI

Parkinson's Disease Alliance of WI A world where advanced research & treatment eliminate disorders like Parkinson's Disease In 1996, Nebraska created the country's first PD registry.

Parkinson’s disease has a significant impact on individuals, families, and society. People living with Parkinson's often require caregivers as the disease progresses and hinders their ability to perform daily activities such as dressing, eating, and walking. As the fastest growing and 2nd most common neurodegenerative disease (behind Alzheimer's), the impact of Parkinson's disease is expected to g

row significantly. A Parkinson's disease registry is crucial for several reasons: it helps track the prevalence and progression of the disease, informs public health planning, facilitates research, and aids in clinical trial recruitment. By gathering comprehensive data on Parkinson's disease cases, registries can provide valuable insights into the disease's impact on different populations and potentially identify risk factors, ultimately leading to better treatment and care strategies. When Wisconsin passes it's own legislation, we will join 15 other states in collecting health information about people living with Parkinson's in a way that supports patients' privacy and dignity and advances science and healthcare.

Wisconsin has no way to count how many of us are living with Parkinson's. We estimate it's over 16,000 people — but nobo...
08/26/2026

Wisconsin has no way to count how many of us are living with Parkinson's. We estimate it's over 16,000 people — but nobody knows for certain, and that gap makes it harder to get the research, funding, and care our community needs.

On October 14, PD Alliance of Wisconsin is joining Wisconsin Roots Rising Day of Giving, a 24-hour online giving day bringing together dozens of community-led organizations across Wisconsin. Early giving opens October 10.

Here's how you can help before the big day even starts: create your own personal fundraising page under our team and share it with your family, friends, and neighbors. Every gift you bring in goes directly to building Wisconsin's first Parkinson's Disease Registry.

👉 Start your page: https://www.zeffy.com/en-US/team/parkinsons-disease-alliance-of-wi (click "Fundraise")

Whether you're living with PD, caring for someone who is, or just believe every Wisconsinite deserves to be counted, this is one concrete way to help make that happen.

Embolden WI

Help us establish a Parkinson's Disease Registry in Wisconsin to propel groundbreaking research and treatment advancements for this condition. By…

A heartfelt thank you to UW Health for joining us as an Advocate sponsor of our October 6th Summit! Your support helps b...
08/26/2026

A heartfelt thank you to UW Health for joining us as an Advocate sponsor of our October 6th Summit! Your support helps bring together researchers, clinicians, policymakers, and advocates from across Wisconsin to lay the groundwork for our state's first Parkinson's disease registry. We're grateful to have you standing with Wisconsin's Parkinson's community.

We're deeply grateful to SSM Health for stepping up as a Champion Level sponsor of our October 6th Parkinson's Disease R...
08/21/2026

We're deeply grateful to SSM Health for stepping up as a Champion Level sponsor of our October 6th Parkinson's Disease Registry Summit! Their generous support helps bring together patients, caregivers, clinicians, and advocates from across Wisconsin to move forward on issues that matter for our Parkinson's community. Thank you, SSM Health, for standing with us and for your ongoing commitment to the health of Wisconsinites.

08/20/2026
Please read and share widely. Our founder and director, Stephanie Johnson, is quoted in the article.
08/13/2026

Please read and share widely.

Our founder and director, Stephanie Johnson, is quoted in the article.

California announced that it’s phasing out paraquat, a pesticide widely used in the United States that is linked to Parkinson’s disease.

07/10/2026

Our Founder and Director, Stephanie Johnson, was featured on this podcast!
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