06/19/2024
I am introducing you to Ariya Panwala. She is a beautiful 10 year old girl with a rare genetic disease. I am fortunate to be on her team of therapists.
I am asking you all to vote over the next few days, everyday, for Ariya's Aunt Manisha to be selected to be on the cover of Muscle and Fitness HERS. She is eligible to win $20,000 which she will donate to the foundation working rigoursly to develop Gene Therapy Clinical Trials for Infantile Neuroaxonal Dystrophy (INAD). No fee. Hardest part is remembering your fb password ;)
https://mshealthandfit.com/2024/manisha-panwala
Below are links to Ariya's story, the foundation founded and run by her parents, and opportunity for donations.
Ariya was diagnosed with Infantile Neuroaxonal Dystrophy (INAD) at two years old
https://www.jax.org/news-and-insights/2023/june/panwala-family-odyssey
www.ariyaswish.org
Parents of a child with INAD, a rare nervous-system disorder, partner with the JAX Rare Disease Translational Center to test therapies.