They provide genetic testing, counseling, monthly support groups, medical clinics and research study activities. We often use the short version- HNDC- and this has apparently brought some confusion with the national HD organization, Huntington's Disease Society of America (HDSA). We are not, and never have been an affiliate of the national organization. While we share a common goal to assist those
with Huntington's disease, our direction, purpose, mission, and funding sources are dramatically different. All HNDC funds provide direct research and patient care programs for our regional area. ALL MONEY is used for these important program services, none is used for overhead, salaries, or sent out of state. If you want to know where your dollars are used, please contact us and arrange an opportunity to learn more about WHERE your donations go, and to WHOM they help directly in this area. PLEASE...Be an informed supporter and know where your time, talent and donations are going. Our MISSION:
At the Hereditary Neurological Disease Centre, we are dedicated to walking alongside individuals and families on their Huntington’s Disease (HD) journey. We provide compassionate guidance, comprehensive support, education, and advocacy—at little to no cost—empowering those affected to navigate the challenges with dignity and hope.
