Virginia Bleeding Disorders Foundation VABDF

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Virginia Bleeding Disorders Foundation VABDF Dedicated to serving and supporting the needs of those impacted by a bleeding disorder through educa Inclusion on the VHF page is not an endorsement.

DISCLAIMER
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The Virginia Hemophilia Foundation (VHF) page is provided for general information purposes only. VHF does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, VHF recommends you contact your physician or local hemophilia treatment center (HTC). We request that you respect fellow community members and the posting guidelines of Facebook, and refrain from including any of the following in your comments:

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NEWPORT NEWS | Educational Dinner “Speak Your Truth”⁠⁠Time: Thursday, November 12th @ 6:30⁠Location: Smoke BBQ Restauran...
29/10/2026

NEWPORT NEWS | Educational Dinner “Speak Your Truth”⁠
⁠
Time: Thursday, November 12th @ 6:30
⁠
Location: Smoke BBQ Restaurant, 10900 Warwick Blvd., Newport News, VA 23601⁠

Join us for an evening of education, connection, and support. This program is tailored for individuals and families affected by inherited bleeding disorders who are Virginia Bleeding Disorders Foundation (VABDF) constituents and their family and/or household members. Dinner will be provided and there is no fee to attend.

Topic: Speak Your Truth

Managing your bleeding disorder may come with some trade-offs. This presentation will discuss some of the challenges that you may face with bleeding disorders such as breakthrough bleeds and administration and dosing concerns. It will also discuss talking points to make the most out of the visits with your health care professional.

With our presenter Christy Glass, a Pediatric Nurse Practitioner. She completed her Bachelor and Master of Science in Nursing at West Virginia University in Morgantown, WV. Ms. Glass is currently a Nurse Practitioner at WVU Medicine Children’s Department of Hematology/Oncology-Pediatric Blood Disorders and Cancer Center as well as an Assistant Camp Director at Camp Winaca HemoVon. She previously served as Adjunct Faculty for the Pediatric Nurse Practitioner Track at West Virginia University School of Nursing.


Thank you to our sponsor, Novo Nordisk!

27/10/2026

Presented by the Hemophilia A Research Program (HARP) Featuring Jill Johnsen, MD Hosted by Girls Bleed Too Informative session covering: ✅ Hemophilia Genetics ✅ Hemophilia and Pregnancy Bring your questions. Dr. Johnsen will answer them live!

What does the next chapter of your story look like?Join VABDF this Thursday, Oct. 22nd at 7 pm for "Paint Your Story", a...
20/10/2026

What does the next chapter of your story look like?

Join VABDF this Thursday, Oct. 22nd at 7 pm for "Paint Your Story", a virtual, interactive educational program to help you define your goals and picture where you want to go next. Discover more about hemophilia A and becoming the artist of your own journey. ➡️Register here: https://vabdf.org/event/virtual-paint-your-story-program/

Each household that attends and actively participates will receive one $25 electronic gift card, provided by VABDF, to help cover dinner while enjoying the program from home. VABDF will email gift cards after the event.

Thank you to our sponsor, Takeda!

🎉 You’re invited to the inaugural UVA Inherited Bleeding Disorders Center Fall Community Open House & Education Event Sa...
06/09/2026

🎉 You’re invited to the inaugural UVA Inherited Bleeding Disorders Center Fall Community Open House & Education Event Sat., Oct. 17!

Join the UVA Inherited Bleeding Disorders Center (formerly the Hemophilia Treatment Center), the UVA-IBDC Community Advisory Council, and VABDF for an afternoon of learning, connection, and family-friendly fun. RSVP here by Oct.1 👉🏽https://form.jotform.com/261685697982177

📅 Saturday, October 17, 2026
⏰ 12:00 to 4:00 pm
📍 The Blackburn Inn & Conference Center, 106 Village Drive, Staunton, VA 24401

This special event is open to all patients, families, caregivers, and household members served by UVA-IBDC.

Event highlights include:
• Presentations from the UVA-IBDC care team
• Small-group educational sessions
• Community-building and networking opportunities
• Dedicated childcare
• Age-appropriate programs for children and teens
• Complimentary lunch
• A closing social hour with refreshments and family-friendly activities

There is no cost to attend. Educational sessions, childcare, youth programming, meals, refreshments, and activities are provided free of charge to registered attendees.

Please RSVP by October 1, 2026. Space is limited, so register early to reserve your spot!

Registration and event logistics are being coordinated by VABDF.

We look forward to bringing the UVA-IBDC community together for this special day! ❤️

28/08/2026

There’s still time to join NEXT Leaders Congress! 🥳

If you’re an adult ages 20–30 living with a bleeding disorder, this is your opportunity to connect with others, grow your leadership skills, and help shape the future of the bleeding disorders community.

There is no cost to apply. Once accepted, Save One Life covers your flight, hotel stay, and food. Don’t miss your chance to be part of NEXT!

Apply today and take the next step in your leadership journey! https://docs.google.com/forms/d/e/1FAIpQLSecR88Dq1-MFixjiaQhhdB1yZwKj17FWlR8apa9onFknuuoZQ/viewform

28/08/2026

The application for the National Women's Conference closes on MONDAY!

If you are a woman living with Hemophilia or a Rare Factor Deficiency including Glanzmann’s Thrombasthenia, consider making this YOUR year to take control of your health journey.

Apply today to be accepted to the conference designed just for you. Make connections, seek answers, and join a group of women that can relate.

To apply, visit the link in our bio.

28/08/2026

From Capitol Hill to statehouses across the country, decisions are being made that could impact access to care for the bleeding disorders community.

In our latest advocacy update, we're following federal funding for FY2027, Medicaid work requirements, proposed 340B reforms, Essential Health Benefits, and other policies affecting access and coverage.

At the state level, NBDF and our partners continue to advocate on issues impacting the community, including copay assistance, HTC services, Medicaid coverage, and more.

📣 Stay informed about the policies we're watching and the work underway to protect access to care.
🔗 Read the latest advocacy update: https://bit.ly/4hPIaOT

28/08/2026

One Drop welcomes those living with all ultra-rare factor deficiencies (including FId, FIId, FVd, FVIId, FXd, FXId & FXIII), and ultra-rare platelet deficiencies (including Glanzmann’s Thrombasthenia and Platelet Disorders.)

21/08/2026

We lost one of our giants this week. Donald Smith was a trusted guide, fearless leader, and genuinely one of the kindest humans we know. We are heartbroken and sending so much love and strength to his wife and our dear friend and community member, Beth Smith. Hold your loved ones close 🫶🏻♥️

21/08/2026

We said goodbye to our dear friend and community member, Don Smith this week. He was woven into the fabric of our community and it is hard to imagine it without him. He was a trusted board member, a welcoming presence at events, and an all around amazing human. Our hearts are with his wife, Beth Smith and big hugs to all of his family and friends ♥️

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9702 Gayton Road Suite 277

23238

Telephone

+18047408643

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