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We develop outcome measures to assess the impact of treatment for those with dermatological diseases.

International Dermatology Outcome Measures (IDEOM) is a non-profit organization dedicated to developing evidence-based outcome measures to evaluate the impact of treatments for patients with dermatological diseases.

28/10/2026

Measuring what matters in dermatology starts with the right tools.

IDEOM develops free-to-use patient-reported outcome measures designed for use in clinical research and practice. Our instruments are developed in collaboration with researchers, clinicians, and patients, among other stakeholders, validated through rigorous methods, and made broadly available to support meaningful patient-centered measurement.

Whether you’re a global biopharma team or an independent investigator, IDEOM instruments help you capture the patient voice with rigor, consistency, and confidence.

🔹 IDEOM MSK-Q — musculoskeletal symptoms and their impact in psoriatic disease
🔹 DermSat-7 — treatment satisfaction in dermatologic conditions

All tools are free to use. A brief copyright agreement is required to ensure proper attribution.

📩 Request access: [email protected]

26/10/2026

We’re proud to see our DermSat-7 included in the 10th edition of the National Psoriasis Foundation’s Psoriasis and Psoriatic Arthritis Pocket Guide.

The Pocket Guide is a go-to clinical reference for diagnosing and managing psoriatic disease. In this new edition, Chapter 2 recommends that healthcare providers use DermSat-7 to measure patient treatment satisfaction, and it reproduces the full instrument with IDEOM’s permission.

DermSat-7 is a 7-item Dermatology Treatment Satisfaction instrument. It was developed through IDEOM and validated in patients with psoriasis (JAMA Dermatology, 2025). It asks patients directly how satisfied they are with their treatment. The question captures what matters to them, which is the core of IDEOM’s mission to build evidence-based outcome measures with every stakeholder at the table, especially our patient research partners.

Thank you to the National Psoriasis Foundation for helping put patient-centered measurement into everyday clinical practice.

📘 Download the free Pocket Guide or link in bio: https://www.psoriasis.org/the-pocket-guide/

21/10/2026

Living with chronic itch? Help define your condition.

IDEOM and ILDS are leading an international study to create clear, consistent definitions for pruritus-related diseases. Patient voices are essential.

We’re looking for patients with:
✔️ Lichen amyloidosus
✔️ Somatoform pruritus
✔️ Drug-induced pruritus
✔️ Paraneoplastic pruritus
✔️ Postherpetic pruritus

📧 To sign up, email [email protected] with a letter from the physician who diagnosed you.

🗓️ Deadline: November 1, 2026

Know someone who qualifies? Share this post or tag them below. 👇

19/10/2026

Our colleagues at the National Itch Foundation are hosting the inaugural National Itch Summit, and we want to make sure our community knows about it.

On November 6–7 in Miami, clinicians, researchers, industry leaders, patients and patient advocates will come together to focus on the science, understanding and care of chronic itch. The program covers emerging research and therapies, clinical care, patient perspectives, and the unmet needs that still shape daily life for people living with itch.

If you work in itch research or care, or live with chronic itch, consider joining. Already registered? Share this with a colleague who should be there.

🗓️ November 6–7, 2026
📍 JW Marriott Miami
🔗 Learn more and register: https://nationalitch.org/summit

09/10/2026

Some of the most meaningful progress in research starts with a simple conversation.

Poster sessions bring the dermatology community together in a way few other formats can. Researchers share their latest findings, attendees ask questions, and ideas take shape through open, face-to-face exchange. These moments of connection help move the science forward and spark the collaborations that lead to better outcome measures.

Advancing patient care takes input from everyone invested in it, and every conversation brings us closer to measures that reflect what truly matters to people living with dermatologic disease.

05/10/2026

Psoriatic disease goes beyond the skin - and measuring that broader burden requires the right tools..

The IDEOM MSK-Q is a free, validated, 9-item patient-reported outcome measure designed to assess musculoskeletal symptom burden in people with psoriasis and psoriatic arthritis.
It captures key dimensions of the patient experience over a 14-day recall period,, including:

✅ Musculoskeletal symptom intensity
✅ Impact on daily life
✅ Fatigue

The IDEOM MSK-Q is free to use in clinical trials, observational research, and clinical practice. A brief copyright agreement is required to ensure proper attribution.

📩 Interested in using it in your next study? Contact: [email protected]

28/09/2026

In loving memory of John J. Latella.

John was a long-time IDEOM Patient Research Partner, past Board Member, and dear friend. Living with psoriasis, psoriatic arthritis, and Parkinson’s disease, he turned his experience into a gift for others, contributing to our work in psoriatic disease and mentoring newly diagnosed patients with warmth and wisdom.

He was a Navy veteran, a talented woodworker, and a devoted husband, father, and grandfather who always showed up for the people he loved.

Our hearts are with his wife Vivian, his daughters, and his entire family. Thank you, John, for everything you gave to this community. You will be deeply missed.

24/09/2026

A moment of community from our Vitiligo Workgroup 💚

This group is united by one shared goal: making sure vitiligo treatments are measured by what matters most to the people living with it.

Vitiligo is more than skin deep, and our research should reflect that. When every voice is included, better care follows.

Thank you to everyone who brings their time, insight, and heart to this work. 🤝

09/03/2026

IDEOM will be at Lisbon GRAPPA 2026!

If you’re attending the GRAPPA Network Annual Meeting, we invite you to connect with the IDEOM community for a special gathering alongside the meeting.

📅 Thursday, July 9, 2026
🕛 12:00–13:30 WEST

This meeting is an opportunity to bring together IDEOM stakeholders, GRAPPA members, collaborators, sponsors, and supporters to connect, share ideas, and continue advancing patient-centered outcome measurement in dermatology.

If you’ll be at GRAPPA, we would love to see you there!

Address

1100 Melody Lane, Suite #2003

95678

Telephone

+16502885339

Website

http://www.dermoutcomes.org/

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