Fibrous Dysplasia Warriors Africa Pty Ltd

Fibrous Dysplasia Warriors Africa Pty Ltd Fibrous Dysplasia Warriors Africa NPC is a non profit organisation created with the aim of finding a cure for Fibrous Dysplasia. We will also be hosting events.

Fibrous Dysplasia Warriors Africa NPC was created by both Esther Lukusa and Nella-Marie van Tonder with the aim to raise awareness for Fibrous Dysplasia. Esther and Nella (both fellow FD warriors) and Esther's younger sister Lina Lukusa strive to help find a cure. The main goal of this non-profit organisation is to help patients to pay their medical bills and contribute to the raising of funds in order to find a cure for Fibrous Dysplasia. We are selling homemade jewelry, t-shirts, purses etc in order to raise enough funds. We are also aiming to help guide newly diagnosed patients navigate their journey. Find suitable doctors through patient past and present experience.

05/02/2026

Our RARE Merch Presale is STILL ON!
Did you miss out? Don’t worry, you’ve still got time to secure your favourite RARE hoodies, tees, bucket hats, stickers, mouse pads, and starter packs!💙
Stock is limited, so grab yours while the presale lasts!
https://www.rarediseases.co.za/shop


05/02/2026

🧬 People living with a rare disease often wait years for answers, facing limited research, slow progress, and therapies that remain out of reach.

Breakthroughs in genetics hold enormous promise, but we must ensure that innovation translates into equitable access, so progress benefits everyone, not just those in certain countries or health systems.

⚖️ Equality means giving everyone the same.
💜 Equity in rare diseases means every person, no matter their condition or country, deserves the same chance to benefit from a treatment for their condition.

👉 Learn more about equity: https://go.rarediseaseday.org/equity

05/02/2026

When a family first receives a diagnosis of one of the first things they ask themselves: what will life be like with this diagnosis?

One way to we answer that question is through our photo sharing intiative during . Life can be so many wonderful, wild, inventive, challenging, and awesome ways! Submit your photo to our for the 2026 push!

https://fdmasalliance.org/gawphotoform/

05/02/2026

THIS story doesn't embody "FD/MAS Found Family" then WE DON'T KNOW WHAT!

We LOVE the unshakeable spirit we find in every corner of this community, and we LOVE the story of this South Georgia community coming together to rally around one rare but mighty 6-year-old!

Join us to celebrate more of our during FD/MAS Global Awareness Week (Feb 20-27th)

https://www.walb.com/2026/01/29/six-year-old-south-georgia-girl-faces-rare-bone-disorder-with-unshakable-strength/?fbclid=IwdGRzaAPo0t1jbGNrA-jSwGV4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHgEzSbKJggAT0JOF9z5ZlM-OhaGDip4cXkaobd5W2lBwOP49pXjVtZTSfLUo_aem_JaTI8MsE5yl4K4Wgl9vY6A

Address

Johannesburg

Telephone

+27715360921

Website

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