HAE South Africa

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HAE South Africa

HAE S.A is a patient support group aiming to raise awareness of Hereditary Angioedema in South Africa

24/08/2026

💜 Women & HAE

Throughout a woman’s life, hormonal changes - particularly changes in estrogen, may influence the frequency and severity of HAE attacks.
From puberty and menstruation to pregnancy and menopause, understanding how your symptoms may change is an important part of managing HAE.

This Women’s Month, we’re encouraging women living with HAE to stay informed, speak openly with their healthcare providers and feel empowered in their care. 💚💙💛💜

Learn more about Women & HAE: www.southafrica.haei.org

09/08/2026

💜 Happy Women’s Day, South Africa! 🇿🇦
Today, we celebrate the strength, resilience and contribution of women across our country, including the incredible women in our HAE community.

To the patients, mothers, caregivers, advocates and supporters: we see you, we celebrate you, and we stand with you. 💚💙💜

30/07/2026

🦷 Dental procedures can trigger HAE swelling
Trauma to the mouth during dental treatment can cause oral swelling and may increase the risk of swelling affecting the throat or airway.

Before any dental procedure:
💙 Inform your dentist that you have HAE 💚 Consult your HAE-treating physician 💙 Make sure your treatment and emergency plan is up to date

Any swelling affecting the throat or airway requires immediate medical attention.

Find out more at the HAE South Africa website https://southafrica.haei.org

24/07/2026

🚨 HAE Emergency Information

If you or someone you know is experiencing an Hereditary Angioedema (HAE) emergency, contact the:

📞 National Angioedema Hotline
082 091 5684

For general life-threatening emergencies, always call 112 immediately.

💜 Save this post so you can access these numbers quickly when they’re needed most, and consider sharing it with your family, caregivers, friends or anyone who may need to assist you during an emergency.

TogetherWeCan

20/07/2026

Did you know? 💚💙💜
HAE SA is a support group for people living with hereditary angioedema in South Africa.

By joining HAE SA, you’ll have access to:

💚Reliable, patient-focused information, resources, and patient meetings.

💚Updates on HAE news, education, and awareness initiatives.

💚Opportunities to connect with other patients and families across South Africa.

Membership is free and open to anyone in South Africa with a confirmed diagnosis of HAE.

If you or a loved one has been diagnosed with HAE, we’d love to welcome you. D.M us to join and become part of our growing community.

Visit https://southafrica.haei.org for more!

HAESouthAfrica

25/06/2026

HAE affects more than physical health! ‼️
it can influence education, careers and everyday opportunities.

Whether it’s missing school due to an attack, worrying about falling behind, or navigating work while managing an unpredictable condition, the impact of HAE reaches far beyond the symptoms.
By raising awareness and fostering understanding, we can help create more supportive schools, workplaces and communities for everyone living with HAE 💜

Learn more about living with HAE by visiting our website:
https://southafrica.haei.org

08/06/2026

💬 Self-Care Tip: Connect with Others

Living with HAE can sometimes feel overwhelming, but support is just a conversation away. Connecting with other patients and families can provide reassurance, practical advice and a sense of community.

💜 Learn from those with lived experience
💙 Stay up to date with the latest developments in HAE
💚 Find support when you need it most

Together, we are stronger.

Visit https://southafrica.haei.org for more information!

25/05/2026

Living with HAE is about more than managing attacks. 💜
It can affect daily routines, plans, emotional wellbeing and peace of mind in ways many people may not realise.

Awareness, understanding and support matters!

Learn more 👉
https://southafrica.haei.org

18/05/2026

To celebrate HAE Day, 94 patients and caregivers from across South Africa came together for our patient meeting.

This gathering was made even more special as we hosted the very first in-person meeting for our youngsters community, with 26 young people attending. It was a day filled with connection, support, learning, and shared experiences - reminding us all that no one walks this journey alone.

Thank you to every patient, caregiver, youngster, supporter and industry representative who joined us and helped make the day so meaningful. Together, we continue to build a stronger HAE community in South Africa. 💙

16/05/2026

Happy Hae Day:) 2026 💜

You are seen.
You are supported.
You are not alone.

Hae Day is about awareness, community and standing together in support of everyone affected by this rare condition.

We continue to advocate for earlier recognition, faster diagnosis and better access to care!
Together, we can. 💜

Address

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Johannesburg
•

Website

http://haei.org/southafrica/

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