Dylan Beukes n Vegtertjie soos min.

09/08/2026

🦁 DYLAN TURNED 4 — AND THIS IS A VICTORY WORTH CELEBRATING. 🎂❤️🙏
Four years ago, we were told to prepare for an ending.
Today, we stand here with tears in our eyes, gratitude in our hearts, and one powerful declaration on our lips:

DYLAN IS 4 YEARS OLD! 🦁🎉❤️

At just seven months old, Dylan’s life changed forever — and so did ours.
There were moments when the road ahead looked impossible.
There were painful truths we had to face.
There were circumstances that changed the course of his life.
And there were moments when we were told he might never reach this day.

But we refused to allow a prediction to become his destiny.

We chose FAITH over fear.
We chose HOPE over despair.
We chose COURAGE over surrender.
We chose LOVE over bitterness.
And above everything...

WE CHOSE TO TRUST GOD. 🙏

Today, we don't celebrate what Dylan cannot do.
We celebrate EVERYTHING HE HAS DONE.
Every breath.
Every smile.
Every milestone.
Every little bit of progress.
Every unexpected victory.

Because when you love a child like Dylan, you learn something the world often forgets:
Small victories aren't small at all.
They are miracles in disguise. ❤️

Dylan may not communicate through words.
He may not have mobility.
But his life speaks louder than words ever could.
He has taught us LOVE without conditions.
STRENGTH without surrender.
PATIENCE without giving up.
FAITH when we couldn't see the way forward.

He has changed our family.
He has changed our perspective.
He has opened our hearts to battles that many people never see.
And through every season, God has carried us.
So today, we don't look back with bitterness.
We look forward with FAITH.

Because Dylan's story isn't finished.
THE PAGES ARE STILL TURNING. 📖❤️

And we believe there are still milestones to celebrate, prayers to be answered, doors to open, blessings to receive and beautiful chapters waiting to be written.
So today, our family speaks LIFE over Dylan:
🦁 LIFE.
❤️ HEALING.
💪 STRENGTH.
🌱 PROGRESS.
🙏 PURPOSE.
✨ GRACE.
🛡️ PROTECTION.

And above it all:

GOD HAS THE LAST SAY. 🙏🦁

Dylan, our little Warrior...
You are not a prediction.
You are not a diagnosis.
You are not defined by what you cannot do.
You are Dylan.
You are loved.
You are cherished.
You are precious.
You are growing.
You are progressing.
You have purpose.

And you are surrounded by a family who will continue to stand beside you, pray for you, fight for you and love you — every step of the way. ❤️

🎂🦁 HAPPY 4TH BIRTHDAY, OUR WARRIOR! 🦁🎂

🙏 4 YEARS OF LIFE.
🙏 4 YEARS OF GRACE.
⚔️ 4 YEARS OF FIGHT.
🏆 4 YEARS OF VICTORY.

And perhaps the most beautiful part?

WE ARE ONLY GETTING STARTED. ❤️🦁

Thank You, Jesus, for every breath.
Thank You for every milestone.
Thank You for every victory.

Thank You for every person You have placed on this journey.
And thank You for carrying us on the days when we had no strength left.

Dylan, we love you beyond words. ❤️

🦁 KEEP ROARING, LITTLE WARRIOR.
🙏 YOUR STORY IS STILL BEING WRITTEN.
❤️ AND GOD IS NOT FINISHED YET.

05/08/2026

Helpful tube feeding infographic for new tube feeding families and caregivers.

Taken from:
https://www.moogmedical.com/comparison-of-different-enteral-feeding-tubes/

16/06/2026

16/06/2026

03/06/2026

Bigger than you think...

02/06/2026

Hypoxic Ischemic Encephalopathy (HIE)

Definition

Hypoxic Ischemic Encephalopathy (HIE) is a type of brain injury caused by reduced oxygen supply (hypoxia) and decreased blood flow (ischemia) to the brain, usually occurring before, during, or shortly after birth.

It is a major cause of neonatal mortality and long-term neurological disability.

---

Causes / Risk Factors

Maternal Factors

Severe maternal hypotension

Maternal anemia

Diabetes mellitus

Hypertension / preeclampsia

Infection

Placental Factors

Placental abruption

Placenta previa

Umbilical cord prolapse

Uterine rupture

Fetal Factors

Birth asphyxia

Meconium aspiration

Prematurity

Fetal distress

Multiple pregnancy

---

Pathophysiology

1. Hypoxia + Ischemia

↓ Oxygen and blood supply to brain

2. Energy Failure

ATP depletion

Cellular dysfunction

Acidosis

3. Neuronal Injury

Excitotoxicity

Oxidative stress

Inflammation

4. Brain Damage

Neuronal death

Cerebral edema

Long-term neurological deficits

---

Clinical Features

Mild HIE (Stage I)

Irritability

Hyperalertness

Increased muscle tone

Poor feeding

Moderate HIE (Stage II)

Lethargy

Hypotonia

Weak reflexes

Seizures may occur

Severe HIE (Stage III)

Coma

Flaccid muscles

Absent reflexes

Frequent seizures

Respiratory failure

---

Diagnosis / Investigations

Laboratory Tests

Arterial blood gas (metabolic acidosis)

CBC

Blood glucose

Electrolytes

Imaging

MRI Brain

Cranial ultrasound

Neurological Monitoring

EEG

aEEG

---

Management

Therapeutic Hypothermia

Whole body cooling to 33–34°C

Started within 6 hours of birth

Continued for 72 hours

Supportive Care

Oxygen therapy

Mechanical ventilation if needed

Fluid and electrolyte management

Control seizures

Maintain blood pressure

Medications

Anticonvulsants

Sedatives if required

---

Complications

Short-Term

Seizures

Respiratory distress

Multi-organ dysfunction

Long-Term

Cerebral palsy

Epilepsy

Developmental delay

Intellectual disability

Hearing and vision problems

---

Prognosis

Depends on:

Severity of brain injury

Early treatment

MRI findings

Presence of seizures

Mild HIE usually has good recovery, while severe HIE may lead to permanent neurological disability or death.

---

Prevention

Proper antenatal care

Monitoring during labor

Timely cesarean delivery when needed

Immediate neonatal resuscitation

---

Key Points

HIE is a neonatal emergency.

Early recognition improves outcome.

Therapeutic hypothermia is the standard treatment.

Long-term follow-up is essential.

09/05/2026

Good nutrition is important for people with all types of Cerebral Palsy because it supports energy, muscle strength, bone health, digestion, and overall wellbeing. Every person with CP is different, so food needs may vary depending on mobility, chewing ability, swallowing difficulties, and activity levels. A balanced diet filled with healthy foods can help improve daily life and support long-term health.

Fruits and vegetables are essential because they provide vitamins, minerals, and antioxidants that help the body stay strong and healthy. Colourful foods like carrots, spinach, broccoli, berries, oranges, and peppers are excellent choices. Whole grains such as oats, brown rice, wholemeal bread, and quinoa provide fibre and steady energy throughout the day. Fibre is especially important because constipation can be common in people with CP.

Protein helps build and repair muscles. Good protein sources include chicken, fish, eggs, beans, lentils, tofu, yogurt, and nuts. Healthy fats are also important for brain function and energy. Foods like avocado, olive oil, salmon, chia seeds, and walnuts contain beneficial fats that support the body.

Calcium and Vitamin D help keep bones strong. Dairy products, fortified plant milks, leafy greens, and yogurt are helpful options. Drinking enough water is also very important because hydration supports digestion, energy, and concentration.

For individuals who have difficulty chewing or swallowing, softer foods like mashed potatoes, soups, smoothies, yogurt, scrambled eggs, and pureed vegetables may be easier and safer to eat. Some people may also benefit from smaller meals throughout the day instead of large portions.

A healthy diet can improve comfort, support movement, boost immunity, and increase energy levels. It is always helpful to speak with a doctor or dietitian to create a nutrition plan that matches individual needs and abilities.

04/05/2026

With hearts overflowing with thanksgiving, Dylan’s parents, sister, grandparents, and extended family come before our Almighty God to give all glory, honour, and praise to Rapha Father for His healing power and mercy.

We want to sincerely thank every one of Dylan’s prayer warriors who stood in faith with us and covered Dylan in prayer throughout the past 15 days in hospital. Your prayers, messages, love, and support carried us through one of the most difficult storms of our lives.

A special word of gratitude to our spiritual leaders and family at Doxa Deo Wonderboom and every Care Corner prayer warrior who faithfully called Dylan’s name out before the throne of God. The power of prayer reached the ears of our Almighty Lord Jesus Christ once again, and He showed compassion, mercy, healing, and grace over Dylan’s health challenges.

Today our warrior was released from hospital with a clean bill of health. Praise God — Dylan is looking healthy and strong again, colour has returned to his cheeks, and he has even started gaining weight.

GOD, YOU ARE SO, SO, SO GOOD TO US.

Thank You, Lord, for Your mercy, grace, and unfailing love. Thank You that You are not finished with our story. You, Abba Father, are our Alpha and Omega — the One to whom we give our first, our best, and our last. Even through the storms, You continue to refine us, strengthen us, and remind us that You never leave nor forsake Your children.

To God be all the glory. 🙏❤️

02/05/2026

🚨💛 Tonight’s the night… 💛🚨

The May release at Tubie Fun is just hours away ✨

This drop is all about making tube feeding life that little bit easier—think thoughtfully designed products that give you more freedom, more flexibility, and more confidence when you’re out and about 🙌

🕖 7pm AEST
🛒 Be ready to shop

Once they’re gone… they’re gone 💫