PBC Foundation

PBC Foundation The PBC Foundation is the only UK organisation dedicated to providing support and information to those affected by Primary Biliary Cholangitis (PBC).

The PBC Foundation is a UK-based organisation dedicated to providing support and information to those around the world affected by Primary Biliary Cholangitis (PBC).

17/09/2026

🇮🇹 YOU ARE NOT INVISIBLE: ITALIAN 🇮🇹

The PBC community is incredibly special.

Working at the PBC Foundation, we are lucky enough to see this, feel this, experience this at in-person events such as the recent Patient Conference and the Summit. We get to see first hand the connection and support within the community and we see the hard work in progress, driven by a passion and commitment to improve the lives and experiences of people affected by PBC.

We also hear about the struggles that can come with living with PBC for some. Such as how living with invisible symptoms like fatigue and itch can mean feeling invisible. Well, the PBC community has come together to create a film with a special message for you:

YOU ARE NOT INVISIBLE.

The film is available in 21 languages and you can find the films, including the English version, in a dedicated playlist on our YouTube channel: https://www.youtube.com/playlist?list=PLfuQcObzL5Ps

We are also highlighting a different version of this film each day and today we are sharing the Italian version https://youtube.com/shorts/U3aOaV8myyQ?feature=share.

Please take a moment to view these films and share with your network - you never know who may need to see this message today.

16/09/2026

➡️ YOU ARE NOT INVISIBLE: HEBREW ⬅️

Do you know what time it is?

It's time to watch a special film with a powerful message for anyone living with PBC.

The film is available in 21 different languages and it brings together the PBC community including patient advocacy groups, PBC patients, healthcare professionals, and industry representatives to share one important message:

YOU ARE NOT INVISIBLE.

You can find the films, including the English version, in a dedicated playlist on our YouTube channel: https://www.youtube.com/playlist?list=PLfuQcObzL5Ps

Additionally, we are highlighting a different version of this film each day and today we are sharing the Hebrew version https://youtube.com/shorts/ntwWrw4-RjU?feature=share.

Please take a moment to view these films and share with your network - you never know who may need to see this message today.

Our latest Q&A with Dr Mark Swain and Mo Christie is now available on our YouTube channel and can be viewed here: https:...
16/09/2026

Our latest Q&A with Dr Mark Swain and Mo Christie is now available on our YouTube channel and can be viewed here: https://youtu.be/AVSJJ35qguI

In this PBC Q&A, we cover:
➡️ Different UDCA formulations and tolerability
➡️ Prescribing a particular UDCA formulation
➡️ Can the liver heal with PBC and compensated cirrhosis?
➡️ Why does PBC cause fatigue?
➡️ Understanding different types of fatigue
➡️ Fatigue and brain fog
➡️ Fatigue despite good blood test results
➡️ Exercise and PBC-related fatigue
➡️ Pacing versus pushing through fatigue
➡️ Helping others understand PBC fatigue
➡️ What can you do about PBC-related fatigue now?
➡️ When fatigue or other symptoms change
➡️ What have we learned about PBC fatigue?
➡️ New PBC treatments and fatigue
➡️ The future of PBC treatment and reasons for optimism

Previous Q&As are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Our Q&A sessions are designed to provide general information and support about PBC and do not replace discussions with your own healthcare team. Please note that speakers are unable to provide individual medical advice during these sessions. Questions may be grouped, anonymised or edited for clarity. If you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

Spanish Q&A SpecialQ&A EN ESPAÑOLWe are delighted to welcome Dr Alan Bonder for a special PBC Q&A session in Spanish.Thu...
16/09/2026

Spanish Q&A Special
Q&A EN ESPAÑOL

We are delighted to welcome Dr Alan Bonder for a special PBC Q&A session in Spanish.
Thursday 17 September 5pm UK time / 6pm mainland Spain

This is an opportunity for our Spanish-speaking PBC community to join us, hear from Dr Bonder and learn more about PBC.

If you have a question for the session, please submit it using the contact form on our website https://www.pbcfoundation.org.uk/contact-us/

Visit our Events webpage for more information and details of how to join https://www.pbcfoundation.org.uk/events/

A recording of the session will also be shared on our YouTube channel https://www.youtube.com/pbcfoundation

Our Q&A sessions provide general information and support about PBC and do not replace discussions with your own healthcare team. Speakers are unable to provide individual medical advice. Questions may be grouped, anonymised or edited for clarity.
If you need help with a more detailed issue, please contact our helpline on +44 (0)131 556 6811.

15/09/2026

🇩🇪 YOU ARE NOT INIVISIBLE: GERMAN 🇩🇪

Can you help us, please?

Please help us reach as many people as possible and share this incredible film with one powerful message:

YOU ARE NOT INVISIBLE.

You never know who may need to see this today.

The film is available in 21 languages, was derived from the International PBC Summit 2026 and the PBC community, including patient advocacy groups, PBC patients, pharmaceutical companies and healthcare professionals have come together to support this special project.

You can find the films, including the English version, in a dedicated playlist on our YouTube channel: https://www.youtube.com/playlist?list=PLfuQcObzL5Ps

Additionally, in the coming days we will be highlighting a different version of this film and today we are sharing the German version https://youtube.com/shorts/ykz-QKnvsFM?feature=share.

Please take a moment to view these films and share with your network - you never know who may need to see this message today.

14/09/2026

🇫🇷 YOU ARE NOT INVISIBLE: FRENCH 🇫🇷

STOP SCROLLING!

Are you looking for something to watch for 2 minutes? Look no further!

Our watch recommendation? A collaborative multi-lingual film with a special message for anyone living with PBC:

YOU ARE NOT INIVISIBLE.

This incredible film is available in 21 languages.

Full playlist of films: https://www.youtube.com/playlist?list=PLfuQcObzL5Ps
Today's highlighted film, which is French: https://youtube.com/shorts/S7aZp5KP7fw?feature=share

Please share this post, you never know who needs to see this today.

Our next Choose Me Tuesday online self-care session is tomorrow 6pm UK time.Choose Me Tuesday sessions last for one hour...
14/09/2026

Our next Choose Me Tuesday online self-care session is tomorrow 6pm UK time.

Choose Me Tuesday sessions last for one hour and focus on general wellbeing. They include tools, techniques, tips, and discussions that you can use and adapt to support your own wellbeing.

Visit our website for more information and details on how to book: https://www.pbcfoundation.org.uk/events/

You can find out more about Choose Me Tuesday here https://www.pbcfoundation.international/choose-me-tuesday/

After an incredible couple of days, the Patient Conference has come to an end, brought to a close by Collette, Founder o...
13/09/2026

After an incredible couple of days, the Patient Conference has come to an end, brought to a close by Collette, Founder of the PBC Foundation.

At a Patient Conference in the same year as our 30th anniversary, Collette spoke movingly about the importance of our services remaining free of charge to anyone who needs to use them.

On PBC Day, at the Patient Conference and in our 30th anniversary year, we are proud to say that our services are free and always will be.

Find out more about the Foundation, our services and primary biliary cholangitis on our website https://www.pbcfoundation.international/

If you need our support, please email us at [email protected], use the contact form on our website https://www.pbcfoundation.international/contact-us/ or call us on +44 (0)131 556 6811.

Finally, if you would like to help us continue providing free information, support and community for people living with PBC, we'd be incredibly grateful for your support https://www.pbcfoundation.international/get-involved/donate/

PBC Foundation: Support for life

13/09/2026

🇫🇮 YOU ARE NOT INVISIBLE: FINNISH 🇫🇮

On , grab yourself a cuppa and sit with us for a few minutes.

Immerse yourself in an incredible new collaborative film that’s just been released with a powerful message for anyone living with PBC:

You Are Not Invisible.

32 participants, 21 languages, one powerful message.

The PBC community, including patient advocacy groups, PBC patients, pharmaceutical companies and healthcare professionals have come together to share this message.

You can find the incredible films, including the English version, in a dedicated playlist on our YouTube channel: https://www.youtube.com/playlist?list=PLfuQcObzL5Ps

Additionally, in the coming days we will be highlighting a different version of this film. Today we are sharing the Finnish version https://youtube.com/shorts/z0sWEssG6Ig?feature=share.

Please take a moment to view these films and share with your network - you never know who may need to see this message today on .

13/09/2026

Today is PBC Day and Positive Thinking Day. What a powerful combination.

It is also day 2 of the Patient Conference, and the attendees have an important message to share with you.

Address

Unit 1, Dunfermline Business Centre, Izatt Avenue
Edinburgh
KY113BZ

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 4:30pm

Telephone

+441315566811

Website

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