Hughes APS Trust

04/06/2026

APS (Hughes Syndrome) leaflet now available

Our updated Antiphospholipid Syndrome (Hughes Syndrome) patient information leaflet is now available to download and print for use in clinics and GP practices.

It provides clear, patient-friendly information

We hope this supports conversations between patients and healthcare professionals and helps improve understanding of APS.

👉 Download and print here:
https://www.hughesapstrust.org/information-leaflets/

Please feel free to share with colleagues or display in your practice.

03/06/2026

Finger-prick INR testing and venous blood testing are both used to monitor anticoagulation in antiphospholipid syndrome (APS).

Our latest blog explains how each method works, the differences between them, and the key considerations in clinical practice.

Read more here: https://www.hughesapstrust.org/news-events/finger-prick-inr-testing-in-aps-what-does-the-evidence-say/



🌐 hughesapstrust.org

02/06/2026

What a fantastic day!

A heartfelt thank you to everyone who joined us for our Patients' Meeting, whether in person or online. It was wonderful to see so many familiar faces, meet new members of the APS community, and spend time learning, sharing experiences and supporting one another.

A special thank you to our speakers for their time, expertise and openness, and to St Thomas' Hospital for hosting us. We are also grateful to everyone behind the scenes who helped make the event possible.

Professor Hughes was delighted to see so many people engaged with the charity and its work, and we are excited about what the future holds for the Hughes APS Trust.

Thank you for your continued support. We look forward to sharing more photos and highlights from the day soon.



More info on our website - hughesapstrust.org

22/05/2026

🚨 Final call! 🚨
“In person” ticket sales end tonight at midnight 🎟️
If you’ve been meaning to join us face to face, now’s the time to grab your spot before in-person tickets close. Don’t miss out on the chance to be there in the room with us!
Secure yours before it’s too late 👇
https://www.eventbrite.co.uk/e/patients-meeting-tickets-1986057563636

Join us in person for the Hughes APS Trust Patient Meeting to share, learn, and connect!

11/05/2026

Can’t make it to our Patients' meeting in person?

Virtual attendance tickets are available NOW! 💻

As a small charity, it’s important to us to balance accessibility with maintaining a strong in-person event and sense of community on the day.

We know that for many people, travel, fatigue, health or distance can make attending difficult, so we hope this livestream option allows even more people to take part. The livestream will be a simple, fixed camera view of the presenter and slides.

🎟️ Virtual tickets: £10
📅 28/05/26
📍 Livestream via Microsoft Teams

We hope offering a virtual option allows even more of our community to feel included and connected.

Book your virtual place now before registration closes: https://www.eventbrite.co.uk/e/patients-meeting-tickets-1986057563636

06/05/2026

Great news — we’ve spoken with St Thomas’ and we’re able to live-stream our Patients’ Meeting, so even more of our community can be part of it!

Our priority is still bringing everyone together in person, and we’d absolutely love to see as many of you there as possible.

The live stream will be a simple presenter view. We’ll be inviting questions in advance, with a few taken live on the day if possible.

We’re just confirming whether recording will be possible and will update you soon.

🎟️ Virtual tickets go on sale **Friday 8th May at 12 noon**.

Click on this link - https://www.eventbrite.co.uk/e/patients-meeting-tickets-1986057563636

We’re excited to make this accessible to more people while keeping the in-person experience at the heart of the day.

Join us in person for the Hughes APS Trust Patient Meeting to share, learn, and connect!

23/04/2026

Our lovely trustee, Mags with Katie Martin talking about her life with APS and our charity on BBC Radio Solent

Listen here at 12:10pm 📻 https://www.bbc.co.uk/sounds/play/m002v0qp




Check out our website for more information on APS www.hughesapstrust.org

23/04/2026

Tune in NOW to Radio Solent https://www.bbc.co.uk/sounds/play/live/bbc_radio_solent
Our trustee Mags Thompson-McCormick will be discussing her journey with APS and the work of our charity.

Listen in - she should be live at Midday! 😀

Listen live to Radio Solent on BBC Sounds

14/04/2026

📢 Our Patient Meeting Programme is Now Live!

We’re delighted to share that the full programme for our upcoming APS Patient Meeting is now ready.

Join us for an informative and supportive afternoon featuring:
• Expert talks from leading clinicians and researchers
• Updates from the Hughes APS Trust
• Opportunities to connect with others living with APS
• An open Q&A session to ask your questions

🗓 Thursday 28 May 2026
🕐 1:30 – 4:30 PM
📍 Governor’s Hall, St Thomas’ Hospital, London

Whether you’re newly diagnosed or have been living with APS for years, we would love you to join us.

🎟 Spaces are limited – book your place here: https://www.eventbrite.co.uk/e/patients-meeting-tickets-1986057563636

Have a look at our website - hughesapstrust.org

We hope you find the programme helpful and look forward to welcoming you.
Lupus UK

03/02/2026

Our Q&A Video is Here – Part One

We are pleased to share Part One of our Q&A video, answering some of the many questions raised by our community.
We received so many thoughtful questions that this is the first in a series. Part Two will be recorded with Dr Kaul, and we look forward to answering more of your questions soon.

Thank you, as always, for your continued support.

The video will also be available on our website: hughesapstrust.org