Haemnet

10/09/2026

💡All new articles published in Bleeding Disorders: Care & Practice now include a plain language summary, making it easier for everyone to find out about the latest bleeding disorders research.

🆕 New and forthcoming articles in include:

🇪🇸 Benitez Hidalgo et al. on how a simple model for measuring how long with rFIX-FP remains active in the body measures up against testing with specialised software (WAPPS-Hemo)

🇬🇧 Narrative review by Owen-Wyard et al. on needs in extremely rare

🇺🇸 Case series by Escobar et al. on the use of a new bypassing agent in people with A and on prophylaxis who had major

🔗 Link to the journal in bio

07/09/2026

Do you have a bleeding disorder? And have you ever considered taking part in research?

🌟 Haemnet has a number of new research studies starting soon – and we’re particularly interested in hearing from people with haemophilia B living in the UK.

👤 By sharing your experience in our lived experience research, you can contribute to improving treatment and care for everyone who lives with a bleeding disorder.

🔍 To find out more about participating in our studies, get in touch: https://loom.ly/vkd8zoE

03/09/2026

While the podcast takes a short break, why not explore our archives?

You can listen to:

♥️ Episodes from our ongoing collaboration with on aspects of family life with a bleeding disorder

🌍 Personal stories from people living with haemophilia A and B, Glanzmann Thrombasthenia and Factor V deficiency, from the UK and Africa

💬 Discussions on issues impacting people with haemophilia A and B, von Willebrand disease, and Glanzmann's

📣 Conversations about topics including new treatments, women and girls with bleeding disorders, ageing with a bleeding disorder, pain, and more

Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M

25/08/2026

Does your child have a bleeding disorder? And have you ever considered taking part in research?

🌟 Haemnet has a number of new research studies starting soon – and we’re particularly interested in hearing from people with haemophilia B and their carers, living in the UK.

💬 By sharing your experience in our lived experience research, you can contribute to improving treatment and care for everyone who lives with a bleeding disorder.

🔍 To find out more about participating in our studies, get in touch: https://loom.ly/vkd8zoE

18/08/2026

We couldn't do it without you! 🙏

Everything we do around bleeding disorders ultimately comes down to the people who live with them and their families.

A huge thank you to everyone who shares their experiences with us in our research studies, blogs, the podcast and beyond. Individual stories really do matter when it comes to understanding bleeding disorders.

If you'd like to find out more about how your story can help our research, get in touch.

12/08/2026

The podcast is taking a summer break ☀️

But you can still catch up with all episodes so far in our special collaboration with Local families with bleeding disorders, looking at aspects of family life with , , and other .

🎧 Available across platforms, or listen here: https://loom.ly/A4UWu6M

05/08/2026

New and forthcoming in Bleeding Disorders: Care & Practice…

🇦🇪 Khanani et al. on real-world treatment patterns and outcomes of switching to efanescotocog alfa in children with haemophilia A

🇪🇸 Benitez Hidalgo et al. on real-world pharmacokinetics of albutrepenonacog alfa (rFIX-FP) in haemophilia B

📖 Plus, Dr Kate Khair and Dr Maria E Santaella on the history and future of

👀 https://loom.ly/mXo6ubE

30/07/2026

New episode of out today! This time we're focusing on what makes parents of children with feel supported — and when they don't.

'When being supported means feeling heard' is part of Haemcast's special collaboration with Local families with bleeding disorders ( ), looking at the experience of bleeding disorders from a family point of view.

🎧 Available widely on podcast platforms, or listen here: https://loom.ly/Ye0KIjo

28/07/2026

Did you know that over 300 million people globally live with ?

And that more than 1.3 million lives are lost each year to hepatitis B and hepatitis C?

Among those impacted are people who contracted hepatitis due to receiving contaminated blood products in the 1970s and 1980s.

In 2026, the theme for World Hepatitis Day focuses on breaking down barriers that prevent people with hepatitis from accessing diagnosis, treatment and care.

Inequities in access to healthcare, racial inequality, discrimination against women, low awareness, misinformation and stigma…

Let's break it down.

23/07/2026

We're excited to hear about the launch of the new BloodStream Media podcast , which takes a closer look at through conversations with people who live with Glanzmann's and the people who care for them.

The first episode, titled 'The Shadow Effect' is out now, with contributions from Eliza Van Sweden, Amy Owen-Wyard, Dr Guy Young, and 's Dr Kate Khair.

🎧 Listen here: https://loom.ly/D36jz3A

Congratulations to BloodStream Media for putting together this important series, and thank you to all those who shared their experiences of Glanzmann's. We're sure this will do much to improve understanding of the day-to-day impact of Glanzmann Thrombasthenia.

What happens when bleeding becomes so familiar that it no longer feels worth reporting? In the premiere episode of The Bleeding Edge, host Patrick James Lynch brings together patients, caregivers, clinicians, and researchers to explore the realities of living with Glanzmann thrombasthenia.