18/06/2026
The way we diagnose hypermobile Ehlers-Danlos Syndrome (hEDS) is changing. The current criteria, updated in 2017, are set to be revised this year (2026). While the 2017 criteria improved diagnosis, they've been criticized for being too restrictive, not fully accounting for variations across different bodies, ages, and ethnicities. The upcoming criteria are anticipated to be more nuanced, better capturing the full spectrum of presentation and identifying those who may have been previously missed. If you've been assessed before and didn't quite meet the criteria, it's worth noting that these are about to change, and what didn't qualify before might soon. Stay tuned for updates on the new criteria.