ERN GUARD-Heart

Routebeschrijving Website

ERN GUARD-Heart ERN GUARD-Heart is part of the European Reference Networks on rare and complex heart disease.

The mission of ERN GUARD-HEART (also referred to as the Network) is to facilitate access to highly specialised diagnosis and treatment of rare and complex heart diseases in both adult and paediatric patients across the European Union (EU). ERN GUARD-HEART brings together, in its starting phase, a geographically diverse group of 24 expert healthcare providers from 12 different Member States committed to patient-centred care, efficient practice based on evidence, knowledge sharing and education, and translational research. The initial focus will be on genetically transmitted heart disease and several specific procedures in paediatric patients.

Hereby the fifth newsletter of 2024, with topics:- Webinar ->27-11-2024, at 17:00 ‘Cardiomyopathies and Pregnancy’ - Who...
08/11/2024

Hereby the fifth newsletter of 2024, with topics:

- Webinar ->27-11-2024, at 17:00 ‘Cardiomyopathies and Pregnancy’
- Who are our ePAG’s?, with Giovanna Campioni - AICCA
- LMNA-cardiac collaboration with Citizen Health
- 16th ERN GUARD-Heart board meeting
- Save The Date, Next boardmeeting Friday14 March 2025
- Joint Transnational Call by ERDERA
- Latest ERN GUARD-Heart Publication (s)


Hereby the fourth newsletter of 2024, with topics:- The launch of the ATS Registry!- The launch of the FA registry!- Con...
28/08/2024

Hereby the fourth newsletter of 2024, with topics:

- The launch of the ATS Registry!
- The launch of the FA registry!
- Conect4children.org
- Agenda online board-meeting 27th of September
- Who are our ePAG’s with Inês Pinto Gonçalves from Portugal
- LMNA PRIORITY project awarded prestigious Leducq grant
- Upcoming Webinar 25th of September
- Latest ERN GUARD-Heart Publication (s)

Hereby you can watch the recording 19; Innovative therapy in HCMhttps://youtu.be/PvkxWBx2CJw?si=T3Njl5mzrHG42RVg ...
06/08/2024

Hereby you can watch the recording 19; Innovative therapy in HCM
https://youtu.be/PvkxWBx2CJw?si=T3Njl5mzrHG42RVg


Nineteenth edition of our series of educational webinars for healthcare professionals on all different thematic areas within ERN GUARD-Heart. Each month, the...

In March we started recording a podcast series in which all ePags or patient representatives are requested to participat...
30/07/2024

In March we started recording a podcast series in which all ePags or patient representatives are requested to participate.
We’ll be talking about on how the representatives involved in the network board, we are sharing relevant information on how they’ve engaged, struggles and good things too, to be effective on the role, being thought provoking, and finally; what to expect of their Network and their role. Some have just been appointed, others for quite some time.

Listen to episode 5, with Katja Laine (Finnish Association for Heart Children and Adults) and Stefan Bassant (LMNA Cardiac)

https://guardheart.ern-net.eu/podcast/epag-podcast-5-katja-laine-and-stefan-bassant/

Adres

Meibergdreef 9
Amsterdam
1105AZ

Website

Meldingen

Wees de eerste die het weet en laat ons u een e-mail sturen wanneer ERN GUARD-Heart nieuws en promoties plaatst. Uw e-mailadres wordt niet voor andere doeleinden gebruikt en u kunt zich op elk gewenst moment afmelden.

Snelkoppelingen

Gesponsord

Delen

Categorie