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Follow Fearne Diagnosed with a neurodevelopmental disorder caused by a variation to gene GABBR2.

Yesterday was a day of Fearne being exhausted but unable to relax enough to sleep without waking within minutes. She see...
09/12/2026

Yesterday was a day of Fearne being exhausted but unable to relax enough to sleep without waking within minutes. She seems to be struggling since returning to school and is now under the weather, overstimulated and overtired. It was 2pm before she managed to actually get some rest

Sisters 💜 🌍 💜
09/08/2026

Sisters 💜 🌍 💜

09/05/2026

Happy little Fearne. Not taking the happy moments for granted.

Back to school for Fearne and it’s completely exhausted her.  Just so worn out. Not that long ago she couldn’t sit by he...
09/03/2026

Back to school for Fearne and it’s completely exhausted her. Just so worn out. Not that long ago she couldn’t sit by herself these photos but look at her now

Getting back in her stander after a few days off when she’s just not been herself. We aim for Fearne to her daily target...
08/30/2026

Getting back in her stander after a few days off when she’s just not been herself. We aim for Fearne to her daily targeted training practice but it’s easy for life to get on the way. Fearne seemed to have been a little unwell earlier this week so we just worked on keeping her happy and comfortable with time standing taking a back seat. Happy Fearne, happy house

Stick 'n' Step ✨ We are so pleased with all the progress Fearne has made this year. Being comfortable and pain free has ...
08/28/2026

Stick 'n' Step ✨ We are so pleased with all the progress Fearne has made this year. Being comfortable and pain free has allowed her to develop physically and socially as well, interacting more with the children and grown-ups around her and keeping her body still for longer periods, whether in lying, sitting or standing. 😊

We have continued practising a variety of positions on the Galileo and Fearne is now able to sit independently for longer periods. She is also able to maintain high-kneeling as well as standing with a bit of support at the hips. During the last few sessions of the year we have also started practising taking steps with 2 persons’ support, one from the back and one from the front, and this is something we will be building on next year. 💪

Well done Fearne! 👏❤️

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Denver, CO
80202-4214

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