10/23/2026
Born with sickle cell disease, Kaiyen had a typical childhood until a stroke, a serious and very real complication of sickle cell disease, revealed a second diagnosis: moyamoya disease. Moyamoya disease is a rare cerebrovascular disorder where the internal carotid arteries in the skull slowly narrow or block, reducing oxygen-rich blood flow to the brain.
Kaiyen’s family turned to the team at Ochsner Children's Hospital in New Orleans, where hematologist Corey Falcon, MD, and the transplant team led by Robert J. Vasquez, MD, PhD, and nurse Jodi Ormond, created a healthcare plan that would ultimately save her life. And part of that care plan was a stem cell transplant.
"Don't lose hope," Kaiyen's mother Harriet J. said. "I know it gets really scary, but don't lose hope." This mantra kept her going through the challenges.
That hope carried Kaiyen’s family through months of treatment, and it led to a discovery that Harriet credits as a miracle: Kaiyen's younger sister turned out to be a perfect stem cell match for her sister.
After receiving a donation from her sister and undergoing a stem cell transplant, Kaiyen's blood no longer shows any sickled cells, which are the sickle cell shapes that make up sickle cell disease.
"All of the staff at Ochsner were so kind, so reassuring and so helpful through the process," Harriet said. "With the Ochsner team informing us of every procedure, this helped us to maneuver through the process with a little less stress."
Today, Kaiyen is thriving. She recently started high school and attended her first homecoming dance, milestones her family once feared she might not reach.
"Kaiyen is an inspiration to me and our entire pediatric sickle cell team at Ochsner Children's," said Dr. Falcon. "She persevered through all of these tribulations with grace, honor and humility. Kaiyen is now thriving in school, art, design, and entrepreneurship, and I couldn't be prouder of her."
To learn more about the pediatric care available at Ochsner Children's, visit: https://ow.ly/cPGB50ZZPEM.