Bailey Baio Angel Foundation/ Glutaric Acidemia-I & other OA's

A Personal Note from Scott and Renee':

"As many of you have heard, our family went through a horrifying experience early on in the life of our beautiful daughter, Bailey. Within days of her birth, Bailey tested “positive” for a metabolic disorder known as “G-A 1”. For the first ten weeks of her life, we lived a nightmare founded in overwhelming love that we felt for this gorgeous little Angel who

had graced our life, combined with a level of fear, grief, and pain that we had never before experienced in our lives. As it turned out, our prayer for a miracle was answered as Bailey’s final round of tests came back showing that the first tests had been ‘false positives’. Our little Angel was healthy, we were beyond lucky and more than grateful for the prospect of a healthy future together as a family. As we went through our journey that very long 10 weeks, we discovered that other people are not so blessed. When Bailey was given the all-clear after our initial feelings of joy, we realized clearly that we must not forget those whose miracles were not granted - and that we were obligated by our blessings to try to help others whose lives are being deeply affected by this family of illnesses. We realized as well that the living hell we had endured during that short period of time is nothing compared to the families that actually have children with some type of metabolic disorder and the difficulties they face with every day that passes. Within these realizations, came the birth of the Bailey Baio Angel Foundation."