Center for Duchenne Muscular Dystrophy at UCLA

09/30/2026

If you cannot make it in person to Becker Education and Engagement Day on October 17 and 18, Virtual sessions will be available, and registration is free. Register here:
https://beckereducationandengagement.com/virtual-registration/?fbclid=IwY2xjawUqOplleHRuA2FlbQIxMABwZG9mAWJyaWQRMUJNQWFiWWxESU5iSzZhR25zcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeM8zH9Oh6j9GLbwV0Fr9W13qoE615GD-kI6skPGrFvnX7Fn_qh0xWCdO3ULs_aem_zIxr9R5zIcJlDw3x7qxCbA

09/28/2026

Join Parent Project Muscular Dystrophy on Thursday, October 1st at 10:00 AM PT for their fall Advocacy Town Hall. Take a look at the latest federal policy developments affecting the Duchenne and Becker community and what to expect in the months ahead.

https://www.parentprojectmd.org/events/ppmd-advocacy-town-hall-federal-policy-updates-a-look-at-whats-ahead/?fbclid=IwY2xjawUnk2ZleHRuA2FlbQIxMQBwZG9mAXNydGMGYXBwX2lkCzE5ODg0MDI4OTYzAAEeXRLDVXDQAMLdmHCJprCCE2q9wlQFStYQIicOzwMDCJln9cZXOSEbiflcFng_aem_5sYTAwyjeiWR5mhCOqSBoQ

Join PPMD on Thursday, October 1st at 1:00 PM ET for our fall Advocacy Town Hall as we take a look at the latest federal policy developments affecting the Duchenne and Becker community and what...

09/24/2026

Coming soon....

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09/21/2026

09/09/2026

Regulatory update from Novartis (Avidity): Novartis announced on September 8, 2026 that they are advancing delpacibart zotadirsen (del-zota) in patients with Duchenne muscular dystrophy with mutations amenable to exon 44 skipping (DMD44). The company filed del-zota for accelerated approval and was granted priority review designation by US Food and Drug Administration (FDA).

09/07/2026

Today is Duchenne Awareness Day and we would like to acknowledge and thank ALL of the boys and families who participated in clinical trials and research studies for Duchenne, and who helped us get the first drug (Eteplirsen) approved almost 10 years ago. To honor this milestone, on this Duchenne awareness day, we are sharing the trailer for "The First- Stories that Changed Duchenne '' which will be released this fall.

The First- Stories that Changed Duchenne is a documentary sharing t...