UC Davis Neuromuscular Research

06/03/2026

HUGE congratulations to our NMRL’s Sean Romeo for his outstanding work in clinical research. Sean has demonstrated excellence, integrity, and resilience through his work as a Research Coordinator/Regulatory Coordinator this past year, and has been an absolute hammer for the lab! 🎊🎉

Well deserved, Sean!!


IMAGE DESCRIPTION: SLIDE 1: Top- Rachel, Lynea, Sean, Dr. McDonald, and Erica pose for a picture in the hallway. Bottom- Sean and Dr. McDonald take a photo together at the event. Text reads: “CRC APPRECIATION 2026!” SLIDE 2: Sean is pictured with an award, with confetti and the UC Davis Health campus in the background. Text reads: “UC Davis Health Physical Medicine and Rehabilitation. CONGRATULATIONS. CRC appreciation award. Sean Romeo, Clinical Research Coordinator.” SLIDE 3: Top- Sean gives an award acceptance speech in front of research peers in a conference room. Bottom left- Sean accepts award and takes picture with Olga in the front on the conference room. Bottom right- Sean poses solo with an “I won” sign, smiling and giving a thumbs-up. SLIDE 4: Top- Scott, Lynea, Sean, Erica, and Rachel pose for a picture at the photo spot at the event. Bottom-  Scott, Lynea, Sean, Erica, and Rachel take a photo together, wearing silly glasses. SLIDE 5: Video description- Sean gives acceptance speech in front of a conference room full of research professionals. Texts reads: “So my hope, to wrap things up, for the future of clinical research is that we continue to build environments where collaboration and innovation are supported, and we can facilitate new drug discoveries for patients in dire need.”

04/23/2026

Hi everyone, BEED 2026 is on the way! The Becker Education and Engagement Day (BEED) began in 2023 when a group of individuals living with Becker, advocacy groups, clinicians, and researchers in Becker came together to design an opportunity for those living with Becker to connect. In 2025, BEED brought together over 450 Becker community members at locations across the US.

BEED will return in October 2026 with an expanded multi-day format to bring relevant information to the Becker community. BEED 2026 events will be held in Portland, OR, Sacramento, CA, St. Louis, MO, Baltimore, MD, and Orlando, FL. We hope you will join us, pre-register to receive event updates, travel support information, and more!

Image Description: Blue and green flyer for the upcoming event, along with event dates, a short description, and locations for the event. Image also includes a scannable QR code that links you to the event website. Text reads: "Becker Education and Engagement Day, SAVE THE DATE OCTOBER 17-18, 2026. Join Us for Becker Education and Engagement Day! BEED will return in 2026 with exciting updates, expanding to amulti-day conference focused on key topics important to the community. Join us for a full-day program on Saturday, October 17th, followed by a half-day session ending around lunch on Sunday, October 18th. Pre-register to receive updates and registration details. Locations in Portland (OR), Sacramento, St. Louis, Orlando, and Baltimore. Registration is free for individuals living with Becker and their families. Learn more about BEED and pre-register to receive event updates."

04/14/2026

The expanded Duchenne Natural History Study (eDNHS) is open for enrollment across international clinical sites. We're one of them! See the attached link in the original post from PPMD for more information.

This webinar shares information about the expanded Duchenne Natural History Study (eDNHS)—a global observational study designed to deepen our understanding

03/07/2026

The UC Davis Neuromuscular Research Lab will be at MDA Clinical and Scientific Conference Mar 8-11, 2026. See our team in action!

Dr Craig McDonald presenting Clinical Trial Updates on Del-Zota, Delandistrogene Moxeparvovec, and Deramiocel

Poster presentations:
Integrating Machine Learning, Accelerometry, and FFT-Based Step-Frequency Methods for Mobile Gait Characterization: Toward Deployment in STRIDE-AI by Erik Henricson, Albara Ah Ramli and the Walk4Me/STRIDE-AI Study Team

Duchenne Muscular Dystrophy Therapies at UC Davis Health Integrating Evolving Interdisciplinary Care and Coordination for Clinical Research by Rachel Baek, Amanda Lopez, and Craig McDonald

PPMD Certified Duchenne Care Center (CDCC) Research Designation by Erica Goude

03/05/2026

🎉 2026 MDA COLLEGE SCHOLARSHIP APPLICATIONS OPEN NOW!!

It’s that time of the year again, MDA has opened applications for the MDA college scholarship. This scholarship is going to be open until March 15, 2026 and will be awarding $5,000 dollars to its winners. Apply now and don’t miss out on this opportunity!

03/02/2026

JETT FOUNDATION CAMP PROMISE 2026 🚨 OCTOBER 1-4, 2026

Hey everyone! Applications for this year’s Camp Promise are open now! Head to camppromise.org to submit your application online today. Don’t miss this opportunity to make memories of a lifetime!

01/30/2026

🏅2025 NMRL Scholarship Award Ceremony🏅

Please give a round of applause to our winners:
🌟Aidden Whittset
🌟Daylen Seng-Om

We are incredibly proud of your achievements to pursue education and having a strong passion for what you study. You are inspirational to those around you and at the NMRL. We hope that this scholarship can help you further your endeavors!

Congratulations again! 🎉

(Daylen was unable to join our award ceremony, but has picked up his award at a separate time)

01/13/2026

It’s a wrap on 2025! Looking forward to spending the new year serving the community in the best way we know how- together. Cheers to 2026!
#2026

12/17/2025

Today is a day to celebrate for Duchenne Muscular Dystrophy.

It is amazing to witness a change in history. After years of advocacy, DMD has been added to the Recommended Uniform Screening Panel (RUSP) across all states. 🎉 The NMRL gives a HUGE shout out to PPMD and MDA, two organizations that have worked to make this milestone happen 💪💪💪

For more information, please check out the PPMD and MDA IG and website for the press release and blog. Links also provided in our Bio!

11/03/2025

RECAP: NMRL Before Christmas 2025! 🎃

It was great to see all of you - we had a SPOOKtacular time together! 👻 Even Sally and Jack Skellington made it to our party 💥

If you missed this years party, join us next year! Happy belated Halloween! 🧙‍♀️