Hull Epilepsy Support

01/09/2026

https://www.epilepsy.org.uk

Creating a world without limits for people with epilepsy. Info, support, training as well as fundraising and volunteering opportunities.

28/08/2026

☕ Neurospicy Coffee Morning

Come and join us for a relaxed coffee, a chat and some friendly faces.

📅 Monday 31st August
⏰ 10:30am
📍 Ponto Lounge, HU1 3SS

No pressure, no agenda, just turn up, grab a drink and have a natter 🌶️☕

21/08/2026

"The Pulse Oximeter Machine has helped each and every time Marley has had a life-threatening seizure. Although he isn't a fan of the alarm when he wakes up, for us as parents we just love the feeling of security. Even on the good days, we know it's there for us. I couldn't begin to tell you what a life-saver it's been. Thank you so much." Rosie, Mum to Marley who is living with Dravet Syndrome.

Providing peace of mind to parents and carers is made possible through the incredible support of funders Vinehill Trust, The Saturday Hospital Club and The Hedley Foundation, who have all made contributions towards our Seizure Monitor Fund over the past year. We also want to thank everyone who kindly made a donation, helping to fund Seizure Monitors, in the Big Give, Global’s Make Some Noise and NCVO’s match-funding campaign during Small Charity Week in June. Thanks to the wonderful Postcode Lottery players, your donations were doubled through funding awarded by Postcode Places Trust, resulting in a £10,230 funding boost.

Thank you so much for enabling us to provide these essential pieces of equipment to worried and exhausted families. We couldn't do what we do without you.

For more information about our Seizure Monitor Fund, and to apply, visit https://www.dravet.org.uk/apply-for-grants/seizure-monitor-fund/

21/08/2026

21/08/2026

🌳 NEUROSPICY SUNDAY WALK 🌳

Fancy getting out for a walk but don’t really fancy going on your own?

Come and join us! 😊

We’re meeting at the bandstand in Pearson Park at 11am on Sunday 23rd August for a relaxed walk and picnic.

You don’t need to know anyone beforehand and you definitely don’t need to be the most sociable person in the room. Come along, have a wander, chat if you fancy it and join in as much or as little as you want.

Children, families and dogs are all welcome too 🐶

Bring a picnic with you or grab something from the café. And if walking isn’t really your thing, you can always just come along for the picnic and a chat.

Sunday 23rd August | 11am | Pearson Park bandstand

It’s completely free and new people are very welcome.

If you’ve been thinking about coming to Neurospicy but haven’t made it along yet, this could be an easy one to start with. 🌿

05/08/2026

With Epilepsy Action – I just made it onto their weekly engagement list by being one of their top engagers! 🎉

09/07/2026

🚨BREAKING NEWS🚨

Disability Rights UK issues our statement on the Timms Review interim report, which was published today.

"With the hostile political backdrop, Disabled people are fully justified in being concerned about the scope of the Review recommendations"

Full statement 👇
https://www.disabilityrightsuk.org/news/dr-uk-statement-timms-review-interim-report