MGH Neurology

06/01/2026

A new drug, called tofersen, can radically slow and even reverse the course of ALS.

05/29/2026

Read the latest Healey & AMG Center newsletter on clinical trials and observational research: https://conta.cc/4wSdJMP

Learn more about research programs, clinical trial updates, publications, and awards.

Email from Massachusetts General Hospital Spring 2026 Newsletter: Clinical Trials & Observational Research   Sean M. Healey & AMG Center for ALS Spring 2026 newsletter: Clinical trials & observational

05/28/2026

This , we're asking Healey & AMG team members about the care they provide for people living with ALS. Learn more about Judi's role as a nurse.

"I’m Judi Carey, an ALS research access nurse at the Healey & AMG Center at Mass General Hospital. For nearly 10 years, I’ve had the privilege of helping people living with ALS and their loved ones learn about and access research opportunities. While the work can be challenging, it doesn’t come close to the strength and resilience our patients show every day. I love that nurses’ week happens during ALS Awareness Month – a meaningful reminder of the compassion and hope at the heart of this work. Shout out to all our research warriors and ALS RNs and NPs!"

Visit the Healey & AMG Center website to discover more: https://www.massgeneral.org/neurology/als

05/27/2026

The ALL ALS Consortium (ALL ALS) is an NIH-funded observational ALS research program working to improve ALS understandings and accelerate treatment discovery by collecting critical data and samples over time. Hear from Dr. Sabrina Paganoni on why ALL ALS is important to advancing ALS research and contributing to a future without ALS.

Visit https://all-als.org or reach out directly to [email protected] to learn more and join the study!

05/26/2026

This , we asked Michael Slama, MD, PhD, to describe his role as a neuromuscular neurologist at the Healey & AMG Center for ALS.

Learn more about the center on our website: https://www.massgeneral.org/neurology/als

05/26/2026

Please join us on Thursday, 5/28, at 5:00 pm ET for a community Q&A webinar. This week, Sabrina Paganoni, MD, PhD, of Massachusetts General Hospital will present updates on the HEALEY ALS Platform Trial.

Register:
https://mgb-org.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw #/registration

05/22/2026

05/22/2026

Check out the Healey & AMG Center's newsletter on preclinical research: https://conta.cc/49Tubm8

Read about new publications and projects from the bench, as well as community events and recent awards.

Email from Massachusetts General Hospital Spring 2026 Newsletter: Preclinical Research   Sean M. Healey & AMG Center for ALS Spring 2026 newsletter: Preclinical research At the Healey & AMG Center for

05/21/2026

This , we're asking Healey & AMG team members about the care and resources they provide for people living with ALS.

Learn more about Dr. Cynthia Moore's role and the PACT program.

"ALS affects the entire family, including children and grandchildren. That’s why the Daniella Lipper ALS Parenting At a Challenging Time Program was developed. The ALS PACT team offers information and support to adults cared for in the Healey & AMG Center, to help them feel confident about supporting children’s coping with a loved one’s ALS. Thanks to generous support from the EGL Foundation, there is no charge for our service. Our freely available online handouts discuss topics like communicating with children about a new diagnosis, helping children adjust to changes in a loved one’s breathing, swallowing and mobility, and deciding when to seek psychotherapy for a child."

Find the PACT handouts here: https://www.massgeneral.org/neurology/als/services/als-parenting-pact

05/20/2026

On the last day of the Society for Clinical Trials Annual Meeting, Lori Chibnik, PhD, MPH, Brittney Harkey, PhD, MS, Lindsay Heyd, BA, and Hong Yu, MS, will present "From Integration to Dissemination: Data and Statistical Management in a Perpetual ALS Platform Trial" at 11:00 AM MT.

Check out the program here: https://www.sctweb.org/meeting/