MGH Neurology

10/28/2026

If you are attending the Annual Network of Excellence for ALS - NEALS Meeting, stop by the poster sessions today and tomorrow. Members of the Healey & AMG Center will present on a variety of topics, including Neurofilament Light Chain, innovative trial design, enrollment in clinical trials, and more!

View the full meeting agenda:https://meeting.neals.org/_files/ugd/bd7e5f_c452a14e9211422cbc5a1ecc588951d3.pdf

10/28/2026

Presentations at the Annual Network of Excellence for ALS - NEALS Meeting start today!

We have several members from the Healey & AMG Center for ALS presenting at the conference. Check out the schedule below for today:

▪️12:05 PM ET: Merit Cudkowicz, MD, MSc presenting, "Academia-industry collaborative programs support and accelerate seamless ALS drug development: Healey ALS MyMatch and HEALEY ALS Platform Trial experiences"
▪️2:05 PM ET: Ghazaleh Sadri-Vakili, PhD, MS presenting, "RNA Processing Dysregulation and Fusion Transcript Formation in ALS"
▪️2:51 PM ET: Suma Babu, MBBS, MPH presenting, "Healey ALS MyMatch: Program Overview and Latest Trial Updates"

View the full meeting agenda:https://meeting.neals.org/_files/ugd/bd7e5f_c452a14e9211422cbc5a1ecc588951d3.pdf

10/27/2026

In the HEALEY ALS Platform Trial, every participant plays a vital role.

The data and biospecimens collected from the completed Platform Trial are helping researchers investigate new biomarkers and outcome measures that could improve future ALS trials.

By sharing these resources with the broader scientific community, we’re honoring the contributions of each participant and maximizing their impact for the ALS community.

Watch a webinar on placebo data retirement in the Platform Trial: https://www.youtube.com/watch?v=e5aOAn1dDOo

Sabrina Paganoni, MD, PhD of Massachusetts General Hospital was joi...

10/23/2026

Visit the Stronger Together Health Fair on 10/31 at Roxbury Community College for health resources and community connection!

Learn more and register: https://www.globalearlydetection.org/stronger-together -2026

10/22/2026

Missed the HEALEY ALS Platform Trial webinar on 9/24?

Watch it here: https://www.youtube.com/watch?v=FyqsbgygPBc

Drs. Sabrina Paganoni and James Berry were joined by Dr. Michael Weiss of the University of Washington and Dr. Martin Engel of Neurizon Therapeutics to provide an overview of the Healey ALS Platform Trial and Regimen I.

10/22/2026

10/19/2026

Please join us on Thursday, 10/22, at 5:00 pm ET for a community Q&A webinar. This week, Sabrina Paganoni, MD, PhD will present on the HEALEY ALS Platform Trial.

Register:
https://mgb-org.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw #/registration



Network of Excellence for ALS - NEALS ALS ONE I AM ALS EverythingALS Les Turner ALS Foundation Muscular Dystrophy Association ALS TDI The ALS Association North Star ALS

10/16/2026

Watch this recent Network of Excellence for ALS - NEALS webinar to learn about how the Healey ALS MyMatch Program and the HEALEY ALS Platform Trial are working together to create a seamless pathway for patient engagement, trial access, and therapeutic development. During the webinar, speakers:

• Shared insights from these pioneering initiatives
• Discussed the value of academia–industry collaboration
• Explored how integrated research models can accelerate treatment development for ALS while improving the clinical trial experience for people living with ALS

View the webinar: https://neals.org/educational-webinars/accelerating-als-drug-development-through-academia-industry-collaboration-the-next-generation-of-the-healey-als-platform-trial-and-healey-als-mymatch/

Developing effective therapies for ALS requires innovative approaches that connect patients, researchers, clinicians, and industry partners more efficiently than ever before. This webinar will highlight how the Healey ALS MyMatch Program and the HEALEY ALS Platform Trial are working together to crea...

10/13/2026

Dr. Sabrina Paganoni recently joined an episode of Carrigan & Company to discuss the field of ALS research, clinical trials, and the hope and collaboration across institutions to find therapies.

Listen to the full podcast: https://www.youtube.com/watch?v=4rivk_YNBDc

Pete Frates Mom, Nancy Frates joins Kim as her co-host for a show a...

10/13/2026

Please join us on Thursday, 10/15, at 5:00 pm ET for a community Q&A webinar. This week, Doreen Ho, MD of Mass General Brigham and Martin Engel, PhD of Neurizon Therapeutics will lead an Expanded Access Protocol (EAP) discussion.

Register:
https://mgb-org.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw #/registration



Network of Excellence for ALS - NEALS ALS ONE I AM ALS EverythingALS Les Turner ALS Foundation Muscular Dystrophy Association ALS TDI The ALS Association North Star ALS