08/28/2026
What a long day. Left at 8:30 this morning to head to Cincinnati for Bostons cardiology check up. With his trauma disorder, doctor appointments are torture to him. Some teams are great about dealing with his rules and antics, and some are not as good. Unfortunately this time we got the not so good.. which was disappointing because last time we had the best of the best and he did so great and we had no nightmares after. Today he kept telling me he was scared, so I'm preparing for a night of little sleep.. but fingers crossed that's not the case.
But the great news is he got RAVING reviews from the cardiologist. He put on 4.5 pounds since last time (heart babes struggle to gain weight). His Glenn circuit (the path created during his first surgery) looked amazing. His stent had great flow on both sides. His function (squeeze of his heart) looked great.. which for Boston has not always been the case. But overall he has gained so much in his social skills. His talking is on par for his age, the way he plays has changed so much. What he comprehends is so much more. She said it's not often that they put the sentence push surgery back to 5 years old, and great idea in the same sentence... But she just kept telling me "I'm so glad things fell the way they did and we pushed back surgery a year. Because holy cow he is going to be in a much better place next year when he has his open heart surgery. What a blessing in disguise."
We left the hospital on such a high. We hit some traffic on the way home, so we decided to head straight to Auburn's soccer game instead of going home first. We got there shortly before half time, only for them to end up losing, which was a disappointment after their great game Tuesday.
We got home at 8:30 at night .. just a quick 12 hour trip š« . Finished homework for the older kids. Then some snuggles in my bed for the younger 2. Now just praying for a decent night sleep