SCA27b Ataxia Foundation

09/09/2026

The Let’s Move Exercise and Wellness Program is back! 💪

Join us for virtual, expert-led exercise sessions focused on balance, core strength, coordination, and overall wellness. Most movements can be done seated, with optional standing exercises available.

Offered in partnership with Johns Hopkins University, this program brings guided, accessible movement right to your home.

Register free: www.ataxia.org/move

08/27/2026

Join Us for a Special Event About Mobility Devices
September 11 | 1:00 EST (US/Canada)

Mobility devices can provide greater independence and freedom, but deciding when to use one, choosing the right device, and navigating access, maintenance, and changing needs can bring many questions.

Join Liam Dougherty and Kate Leader, co-founders of Day Undefined, for a special event featuring people with lived experience and professionals with expertise in mobility and assistive technology. Through open conversations, attendees will hear practical information, personal perspectives, and helpful insights to feel more informed and confident as they navigate their own mobility journeys.

Here is the link for the schedule and to register for the webinar.

CENTRAL TIME ZONE Have you ever felt overwhelmed when thinking about advanced care planning and end of life care? Join us for a heartfelt webinar designed especially for people living Read More...

08/06/2026

Good nutrition is an important part of supporting your overall health—but what does that look like when you're living with Ataxia?
Join us for All About Nutrition & Ataxia, where you'll learn practical, evidence-based strategies for maintaining good nutrition, managing common challenges like swallowing difficulties and weight changes, and supporting your overall well-being.

Whether you're living with Ataxia, caring for a loved one, or supporting someone in the community, this webinar offers practical information you can put into practice.

Register today: www.ataxia.org/webinars

07/09/2026

Today, I had the privilege of presenting a grant to Drs. Zuchner & Pellerin at UMiami for SCA27B research. Donations can be made at sca27b.org to support more great research like this!

06/18/2026

Our next Zoom meeting will be on Tuesday, 6/23, 4:00-6:00 Eastern (US/Canada). We will have guest researchers from UMiami, Drs. Pellerin & Zuchner, presenting information about the important research they are conducting with the support of a grant from the SCA27b Ataxia Foundation. Hope you can make it!
The Zoom link will be emailed to all members. Please fill out a membership (free) form at sca27b.org if you are not on our email list and would like to join the Zoom.

05/14/2026

Looking ahead, our Zoom meeting in June will be on June 23rd, 4-6:00 EDT (US/Canada). We will have guest speakers (Drs. Pellerin & Zuchner) who will discuss the research they will conduct at the University of Miami utilizing SCA27B patient-derived neurons. I am also happy to announce that our foundation will be awarding this lab $28,000 for this very important research. The goal of this research is to gain a deeper mechanistic understanding of how/why the FGF14/GAA repeat expansion causes ataxia and to identify therapeutic targets to treat SCA27B.

The Zoom invite for this meeting will be emailed to members of the SCA27b Ataxia Foundation. Membership is free, so consider joining sca27b.org if you have not done so already.

05/08/2026

Our next Zoom meeting will be on Thursday, May 21st, 4-6pm EST (US/Canada). If you are a member of sca27b.org, you will receive an email invitation to the meeting. If you would like to attend, please submit a membership form (it is free), at https://www.sca27b.org/contact

Contact Us & MembershipsWe would love to hear about your connection to SCA27b and answer any questions you may have. Please fill out the text boxes on this site or contact us directly through the information [email protected](615) 900-0234SCA27b Ataxia FoundationP.O. Box 10702Lynchburg, VA 2450...

04/27/2026

Finances and disability services can be intimidating to approach, let alone navigate. NAF has a blog on our website that breaks down these overwhelming topics into basic components that make it easier to understand so that you feel confident in your ability to plan for the future.

Take a moment sometime in April to learn more about these topics in recognition of Financial Literacy Month: https://www.ataxia.org/disability-services-and-financial-planning/

04/27/2026

Stretch and relax with next month's brand-new Chair Yoga session led by ! No matter your abilities, these sessions are an adaptable and accessible way to slow down and get moving. The best part? You can do it all from the comfort of your chair.

Register here: https://us02web.zoom.us/webinar/register/WN_YoUCV_YjQzSSHP9_EwXIjA