07/09/2026
Are you a parent navigating a rare condition diagnosis?
Unique and NHS South East Genomic Medicine Service are hosting a webinar on Wednesday 16 September, 12:00 - 13:00, to launch their new guide: Finding Your Way: A Parent’s Guide to Rare Disease.
Participant Panel members Adam Clatworthy and Melanie Dixon helped write the guide, and in the webinar will share their personal experiences and journeys to finding the right support following their children’s rare disease diagnoses.
Register for the online event:
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