LAM Action

11/09/2026

The next meeting of the London and SE support group will take place in Central London on Saturday October 17th at 2pm.

If you would like to join us please respond to the email you should have received from the L&SE group co-ordinator or if you are a newer member of the LAM community and not yet on the group list, or maybe your contact email is not up to date, then please contact Jill Pateman and she will be able to pass on your details to the group co-ordinator.

We are a very friendly and sociable bunch and gladly welcome any new faces to join us for a coffee (or something stronger!) so please do come along and say hello, looking forward to seeing you all on October 17th!

26/08/2026

It’s been a bit hot out there lately, but even hotter off the press is the summer edition of LAMPost! Big thanks to everyone who contributed!

To download the version for mobile devices:

https://lamaction.org/wp-content/uploads/2026/08/LAMPost-Summer-2026-Mobile-Device-Friendly.pdf

To download the version for printing:

https://lamaction.org/wp-content/uploads/2026/08/LAMPost-Summer-2026-Print-Version.pdf

Happy reading and very best wishes from all of us at LAM Action.

18/08/2026

https://www.bbc.co.uk/news/articles/cdrv4z77y2do

Prof Simon Johnson and long-standing LAM patient Helen Sabin have contributed to a wonderful BBC news item about the National LAM Centre in Nottingham. It’s generally an excellent piece which will help raise awareness of our very rare lung disease.

However, newly diagnosed LAM patients should ignore the sensationalist headline - even in 2008 a LAM prognosis was never as bad as Helen’s initial doctor suggested, and since then, as Simon explains and Helen’s story shows, we now have a successful treatment which has radically improved the outlook for patients.

Helen Sabin wants to support other patients, reduce fear and improve understanding.

29/07/2026

25/07/2026

Congratulations and thank you to Kat Johnstone and Mora McGovern, who completed the 25km Glen Tanar Trail Run in 3 hours 7 minutes to raise funds for LAM Action. Thanks also to everyone who has supported their fundraising. Kat's page is: justgiving.com/page/kat-johnstone-1

24/07/2026

Spare a thought for Kat Johnstone and her friend, Mora McGovern as they take on the Glen Tanar 25km Trail Run from 9am on 25th July to raise money for LAM Action. Glen Tanar is a gruelling course along some of the most scenic and challenging routes in Scotland.

Kat was diagnosed with LAM in early 2025, shortly after the birth of her twin girls. To support her fundraising go to: justgiving.com/page/kat-johnstone-1

08/07/2026

Good luck to Kat Johnstone (left) from Aberdeen, and her good friend Mora McGovern who will be taking part in the Glen Tanar 25KM Trail Run to support LAM Action on July 25th. As the name suggests this involves running a rugged 25 kilometre trail through the spectacular Cairngorms National Park in Royal Deeside.

Over to you Kat: “I was diagnosed with LAM after the birth of my cheeky twin girls in February 2025. I am in the early stages of the disease and still undergoing regular checks to monitor progression. Overall, I am doing well but I have been thrown into a new bubble that is struggling for support and funding of a rare disease. Any donation would be hugely appreciated. Thank you for the support for myself and all the other women who are currently living with this disease.”

Good luck Kat and Mora and thank you for supporting LAM Action – best wishes from us all!

If you would like to help Kat with her fundraising, please visit the link below:
https://www.justgiving.com/page/kat-johnstone-1?utm_medium=FR&utm_source=CL

18/06/2026

Good luck to Pippa Byrne from Ramsay who is taking on the Isle of Man 'Parish Walk' with the aim of completing the 85 mile route around the island in 23 hours. She is raising money for LAM Action because her friend, Anna Kerruish - a local farmer - has LAM. Pippa has taken on the challenge before, but last time she ended up in hospital. She hopes she has trained enough to avoid that this year.
As well as meeting up with Anna en route, Pippa will be supported by her partner, Simon and sister, Emma and her two sons, Daniel and Dylan.
Spare a thought for them all in the early hours of Sunday morning and if you would like to add to Pippa's fundraising total go to: https://www.justgiving.com/page/pippa-clare-1

27/04/2026

LAM Action's 5 London Marathon runners tell us what it's like to take part.

If you'd like to run the Marathon for LAM Action we ask you to enter the ballot for 2027. You can do that here: https://www.londonmarathonevents.co.uk/london-marathon

Please contact [email protected] to let him know you've applied and he will then help you to run for the charity if you are successful or consider you for one of LAM Action's places.

26/04/2026

Congratulations and thank you to all 5 LAM Action runners who took part in today's London Marathon. Their fundraising total so far is over £20,000!