30/07/2026
When I created choice, I was already wearing multiple hats.
I was a student, a member of the parent carer forum, a wife, a mum, and a parent carer…
Oh and a blogger.
I began my blog way back when to be able to share with the world not only how I was dealing with becoming a parent carer but also to see if I could find my community.
The SEND World According to Me is a blog created to discuss the nuances of being a mum and a carer all at once. Discussing how I manage the ever changing world of SEND while trying to hold it altogether…
My most recent post is discussing what I wish others knew - if you are curious, have a read…
I feel it’s important to normalise discussing how we cope, or don’t cope, to be able to make changes not just for our families but others in our community 🥰
Tracey ❤️
Things I wish others knew about parenting a disabled child...
Not everything is visible.
People see the wheelchair. The appointments. The adaptations. The equipment.
They don't see the hours spent chasing phone calls, writing emails, reading reports, filling in forms, or lying awake at 3am wondering if you've made the right decision.
I wish people knew that we don't get to "switch off" when our child goes to bed.
Our minds don't.
We're planning the next appointment, worrying about the next surgery, thinking about school, wondering what adulthood will look like, calculating finances, researching equipment, preparing for battles we never asked to fight.
I wish people knew that grief and joy can exist together.
I can be incredibly proud of my daughter while grieving the opportunities she's been denied.
I can celebrate the smallest milestones while feeling angry that they had to be so hard to reach.
Both emotions are valid.
I wish people knew that I don’t cancel our time together ‘because i can’t be bothered’. I cancel because the energy itt takes to get through the days can be a lot. It genuinely is me - not you.
I wish people understood that inclusion isn't just about getting through the door.
It's about belonging.
It's about being able to take part without feeling like an inconvenience, a problem to solve, or an afterthought.
I wish people knew that no matter how much I love my daughter, I cannot fix the world for her.
I wish I could.
I wish I could snap my fingers and have her experience the same as other teens... but she can’t and no amount of ‘tell her she has too’ will change that.
I wish people knew how exhausting it is having to constantly explain your child's needs.
To new practitioners.
To schools.
To family.
To strangers.
You become an expert because you have to.
And perhaps the biggest thing I wish people knew...
We don't want pity.
We want understanding.
We don't expect the world to have all the answers, but we do hope people will choose kindness over judgement, curiosity over assumptions, and listening over telling us what they think they'd do.
Because unless you've lived this life...
You don't just understand it by looking in from the outside.
💜