CURE Epilepsy

06/05/2026

Family members are invited to share a memory of their loved one on the PAME: Partners Against Mortality in Epilepsy conference digital memory wall and virtual memory wall on Facebook.

Submit a photo and beloved memory here: https://bit.ly/4fKusLX

If you submitted a picture for a prior conference, we will continue to use it until we hear from you again. Please email questions to Alison Kukla ([email protected]).

06/03/2026

Now Live 🎙️Epilepsy and Medical Trauma: Recognizing, Accepting, and Healing on the Seizing Life podcast.

Tune in to hear about the unique complexities of medical trauma for patients living with epilepsy, caregivers, and entire families. We cover how medical trauma shows up in daily life, what signs indicate that it's time to seek support, and advice/tools to begin healing.

Our guest is Dr. James Jackson, a psychologist and neuropsychologist at Vanderbilt University Medical Center and author of the recently published Reclaiming Your Life from Medical Trauma. Growing up the son of a father living with epilepsy, Dr. Jackson understands personally as well as professionally the psychological and emotional impacts epilepsy has on the person who has it and their loved ones.

Don't miss this episode - head to your favorite podcast platform and download it now or watch here: https://bit.ly/4tVxVLi

06/02/2026

Thanks for representing CURE Epilepsy at the Geneva Marathon in Switzerland, Ingrid! In honor of her two young sons living with epilepsy, Ingrid is on a mission to run the seven major world marathons while going the distance for epilepsy research. In her own words...

"My two sons are my greatest motivation. Everything I do is driven by the hope of a better future for them and for all children affected by epilepsy. Unfortunately, I have personally seen many cases where children suffer deeply from this condition. It is incredibly important to continue making the issue of epilepsy visible and to highlight the urgent need for a cure."

"For my two sons, I would ideally like to complete the seven major marathons to show them—and others—that it is possible to pursue meaningful goals if you believe in yourself, even in the face of significant challenges. Being able to do this while fundraising for CURE Epilepsy and supporting vital research would be incredibly meaningful to me."

Her dedication and passion towards our cause helps get us one step closer to the finish line — a cure for epilepsy.

05/29/2026

CW: SUDEP

Carina shares her son's story with the hope that it will emphasize just how critical it is to keep research going until we've created a seizure-free world. In her own words:

"My story may not be one that bettered my life, but maybe it will show need for research to cure epilepsy."

"My son was 14 years old when his seizures started. They were mild at first, but over the years (despite trying many different medications) they became worse. I believe he was drug resistant and I tried suggesting other options, but doctors just kept trying new medications. He was on 4 different medications to help stop his seizure, but nothing worked."

"On November 6, 2023, he was home and in his room sleeping. Or so I thought. He had a seizure and no one heard him or knew. I had checked on him many times and just thought he was sleeping. I thought I heard him, but found him lifeless. He had a seizure and suffocated."

"I lost my son to epilepsy. This is why more research is important — so no one else has to lose a loved one ever again. CURE Epilepsy needs all the help and support they deserve. I hope that anyone living with epilepsy is able to be cured before it’s to late."

05/27/2026

Announcing our latest grant! The new SUDEP Clinical Biomarker Team Science Award provides $750,000 in funding to three multidisciplinary teams across the world.

Dr. Shobi Sivathamboo is a neuroscientist, Dr. Andrew Landstrom is a pediatric cardiologist, and Dr. Satya Sahoo is a data scientist. Together, they will explore how to more effectively identify who is at high risk of SUDEP and ultimately prevent this tragedy.

The award is made possible through a lead gift from the Epilepsy Foundation of America as well as families who’ve experienced SUDEP.

05/21/2026

This month's Epilepsy Research News round-up included four unique articles:

🧠 Epilepsy Gene Implicated in Severe Migraine Disorder: https://bit.ly/4uVXMDI

🧠 Treatment of Rare Childhood Epilepsy Could Begin Before Birth: https://bit.ly/42ItiJi

🧠 The Brain Has a Warning System for Its Own Electrical Misfires, and We Can Now Read It: https://bit.ly/4uXctX7

🧠 Inflammatory Cytokine Signatures in Epilepsy: Distinguishing Drug-Resistant from Drug-Responsive Patients: https://bit.ly/43hICwG

Never miss an update! Subscribe for research news delivered right to your inbox: https://www.cureepilepsy.org/subscribe/

Stay up to date with the latest developments across the epilepsy research community--from publications to news articles.

05/21/2026

Watch the Chicago Fire take on the Vancouver Whitecaps while supporting epilepsy research and raising awareness! A portion of ticket sales for the July 16 game will benefit CURE Epilepsy.

Plus, Broadway's Miguel Cervantes will be making a special appearance to sing the national anthem to kick off the game. 🎤 Get your tickets here: https://www.gofevo.com/event/CUREEpilepsy2026

05/21/2026

Have you heard of focused ultrasound? This therapy uses externally applied ultrasound waves focused through the skull to a specific area of the brain to produce therapeutic effects without incisions or radiation.

Last year, we partnered with the Focused Ultrasound Foundation for their first-of-its-kind workshop on treating epilepsy with this promising therapy. Our Chief Scientific Officer, Dr. Laura Lubbers, reflects on the 5 biggest takeaways in a recent blog post. Check it out here:

In November 2025, I had the privilege of joining more than 50 global experts in Charlottesville, Virginia, for a first-of-its-kind workshop hosted by the Focused Ultrasound Foundation in partnership with CURE Epilepsy. Our shared goal was both ambitious and urgent: to evaluate how focused ultrasou...

05/20/2026

Preparation can help you get the most out of appointments with your child’s (or your own) epileptologist or neurologist.

In our latest episode of Epilepsy Explained, Dr. Douglas Nordli shares straight-forward information about how to prepare for appointments to make them as effective as possible.

You don’t want to miss this episode. Check it out here: https://www.cureepilepsy.org/epilepsy-explained/epileptologist-visits-explained/

This Epilepsy Explained episode is generously supported by an independent educational grant from SK Life Science, Inc.. CURE Epilepsy is solely responsible for the selection of the presenter and the content.

05/18/2026

The PAME: Partners Against Mortality in Epilepsy Conference brings together epilepsy researchers, health care providers, nonprofit leaders, and people impacted by epilepsy, including bereaved families, to share knowledge and work together to prevent epilepsy mortality.

The PAME Conference will take place in Denver, CO, on December 3, 2026, with a dedicated family session on December 2.

Stay tuned for more details! We look forward to coming together for this important event.