Understanding Multiple Sclerosis - MS

11/09/2026

New and emerging therapies are opening new possibilities for people living with MS.

At Patient Community Day 2026, leading experts will explore the latest treatment developments – helping translate complex research into clear, practical insights for everyday life.

We’re proud to support this initiative and help bring these important conversations to the community.
📅 23 October 2026
🌍 Online + Toronto, Canada
🌐 Live translations available in 50+ languages
👉 Register now: https://www.ectrimspatientcommunity.eu/registration

Tip: If you can’t make it on this day, or the time zone doesn’t suit, replays will be available in the weeks to follow – so register anyway and be the first to be notified once they are available on demand.


European Committee for Treatment & Research in Multiple Sclerosis

10/09/2026

The latest newsletter from the MS Research Flagship - the group behind our free courses - is out now!

Dive in to learn about our latest studies including the best treatment approach for late-onset MS and how people with MS experience Australia's National Disability Insurance Scheme, plus clinical studies we're recruiting for and more.

Go here 👇
https://createsend.com/t/j-77B0FA5E8C9D58D52540EF23F30FEDED

20/08/2026

💬 “If it's going to be research that is involving people affected by MS, then they need to be guiding what that looks like.”

For Anne Helme, Head of Research and Access at MSIF, meaningful research starts by listening to the people it is designed to help.

Patient Community Day is an opportunity for people affected by MS to hear about the latest research developments while also reinforcing the importance of patient perspectives in shaping the future of care and research. The MS Research Flagship, the group behind Understanding MS, is proud to be a supporting partner in 2026.

🔬 Discover the latest research findings
🧑‍🤝‍🧑 Learn how patient voices are influencing research
🎓 Hear directly from leading experts
🌍 Join a global community in 50+ languages

Be part of the conversation on 23 October.

🔗 Register now: www.ectrimspatientcommunity.eu/registration

06/08/2026

We're living longer than ever before. By 2030, one in six people worldwide will be aged 60 years or over, according to the World Health Organization (WHO).

If you're living with MS, you may have questions about what ageing means for your health, wellbeing and daily life.

Our free Ageing Well with MS online course explores the latest evidence and practical strategies to help you navigate ageing with confidence.

Learn at your own pace, wherever you are.

Enrol today: https://ms.mooc.utas.edu.au/i/ageingu

Ageing Well with Multiple Sclerosis (MS) is a free online course that explores ageing and how it intersects with multiple sclerosis. The course provides strategies for healthy ageing and helps you plan for the future.

04/08/2026

What do the latest research discoveries in MS, NMOSD, and MOGAD really mean for people living with these conditions?

At Patient Community Day 2026, leading experts will break down complex research into clear, practical insights—and answer questions directly from the community.

We’re proud to support this important initiative.

📅 23 October 2026

🕒 15:00–18:00 EDT, plus a bonus hour of Q&A for online participants

🌍 Online + Toronto, Canada

👉 Register today: https://www.ectrimspatientcommunity.eu/registration

Tip: If you can’t make it on this day, or the time zone doesn’t suit, replays will be available in the weeks to follow – so register anyway and be the first to be notified once they are available on demand.

29/07/2026

Could mini brains help repair damage caused by MS? 🧠

Australian researchers are using human stem cells to grow tiny, three-dimensional models of the brain to better understand how myelin, the protective coating around nerve fibres damaged by MS, is formed and repaired.

This innovative research, funded by MS Australia and based at The Florey Institute of Neuroscience and Mental Health, could help advance our understanding of myelin repair and inform future approaches to treating MS.

Dr Sam Barton from The Florey shared insights from this work at Research with Connections 2026, presented by the MS Research Flagship, the team behind our free online MS courses.

🎥 Watch Dr Barton's presentation via the link in the comments and discover how researchers are using cutting-edge science to tackle one of the biggest challenges in MS research.

27/07/2026

Pain is one of the most common symptoms experienced by people living with multiple sclerosis (MS), but it often remains unseen.

This National Pain Week the MS Research Flagship, the group behind Understanding Multiple Sclerosis - MS, is highlighting findings that shed light on the impact of pain in multiple sclerosis.

In our survey of 1,678 participants of the Australian MS Longitudinal Study (AMSLS), a partnership between MS Australia and Menzies Institute for Medical Research , more than half (53%) reported regular pain, with one in five people experiencing between five and 10 different types of pain. Pain medications were used by 87% of survey participants, although many had stopped taking them because of side effects, ineffectiveness or high cost.

The findings reinforce that pain in MS is complex, can have a substantial impact on daily life and wellbeing, and deserves greater recognition and support.

The AMSLS continues to generate vital evidence that helps researchers, clinicians and advocacy organisations better understand the real-world experiences of people living with MS.

📢 Living with MS in Australia? By joining the AMSLS your experiences can contribute to research that improves care, support and quality of life for the MS community.
🔗 Learn more: https://msresearchflagship.org.au/community/australian-ms-longitudinal-study-for-community

23/07/2026

Understanding research shouldn’t require a scientific background.
At this year’s Patient Community Day, complex findings in MS, NMOSD, and MOGAD will be translated into real-life insights – helping people better understand their condition, care, and treatment options.

The MS Research Flagship - the group behind Understanding MS - is proud to support this initiative.
📅 23 October 2026
🕒 15:00–18:00 EDT, plus a bonus hour of Q&A for online participants
🌍 Online + Toronto, Canada
Save your spot 👇

European Committee for Treatment & Research in Multiple Sclerosis

Register for access to the free recorded livestream from Patient Community Day, which was held on 26 September 2025 in Barcelona, Spain. Learn from top neurological experts about the latest MS research and treatments.

17/07/2026

What happens when people living with MS help shape research?

For the past 10 years, lived experience has been at the heart of the MS Research Flagship — the team behind Understanding MS and our other free online courses. Watch their anniversary video celebrating a decade of partnership, discovery and impact.

▶️ Watch on YouTube: https://youtu.be/FSonBQqIV3E

12/07/2026

Making decisions about disease-modifying therapies (DMTs) can be one of the most challenging parts of living with multiple sclerosis (MS).

Deciding about DMTs for Multiple Sclerosis is a free online course designed to help people better understand DMTs and make informed decisions about starting, switching or stopping treatment.

✅ Free and online
✅ Self-paced (4–6 hours)
✅ Open to people living with MS, family members, carers and anyone interested in learning more about MS treatments

Find out more and enrol: https://ms.mooc.utas.edu.au/i/dmtums

Deciding about Disease Modifying Therapies (DMTs) for Multiple Sclerosis (MS) is a free online course that aims to increase understanding about DMTs and help people living with MS make informed decisions about using them.