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Erica's Journey

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Perth, WA
Erica's Journey

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Erica was born on 8th January 2013, this page is devoted to her journey. Erica was born on 8/1/2013, six and a half weeks early. Pierre Robin Sequence.
3.

During the pregnancy we were told that she will have a lot of health issues and to prepare ourselves for the worst. Erica is getting stronger every day and is currently at kindie 3 days a week and going to full time primary in 2018. Here is a list of her conditions.
1. Chromosomal disorder 1q deletion 10p duplication with resultant lissencephaly and absent corpus callosum.
2. Short stature and microcephaly.
4. Mild pulmonary stenosis.
5. Soft grade 1 systolic murmur.
6. Bilateral mild hearing loss.
7. Dyskinetic quadriplegia.
8. Cleft palate.
9. Hip Dysplasia.
10. Fed 100% via a stomach PEGJ

05/11/2026

Eyebgaze part 3

05/11/2026

Eye gaze part 2

05/11/2026

Eye gaze part 1

01/11/2026

Good morning Happy sunday 🌞

27/10/2026

Physio therapy
Home visit 🇦🇺
27/10/2026

27/10/2026

Just finished a physio session and back in the standing frame. Eyes fixed onto the screen.

27/10/2026

Erica physio today 🇦🇺
Home visit🎇

16/10/2026

Happy Friday everyone 💖

16/10/2026

Some time in the standing frame

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Perth, WA

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