ERN RECONNET

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ERN RECONNET

ERN ReCONNET is the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases.

ERN ReCONNET is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern. The content on this page represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

28/10/2026

🎓 ERN ReCONNET Webinar TODAY | Sjögren’s Disease (SjD)

Don’t miss our webinar TODAY at 16 CET:
“Research evidence and patient perspective on the impact of lifestyle factors in patients with Sjögren’s disease”

Event Details:
• Date: TODAY, 28th October 2026
• Time: 16:00 CET
• Target Audience: disease-specific
• Dedicated to: Sjögren’s Disease (SjD)
• ✍️ Registration: rb.gy/u50k95

🎤 Speakers: Dr. Suzanne Arends and ePAG Coralie Bouillot
🎙 Moderators: Prof. Chiara Baldini

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET SjD Resources: https://reconnet.ern-net.eu/disease-ss/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

26/10/2026

🌟 What an incredible journey in Ljubljana!

The in-person sessions of the ERN ReCONNET Transition Training Course have officially concluded, but our shared commitment to improving care for young people living with rare and complex connective tissue diseases (rCTDs) is stronger than ever.

Over the past few days, healthcare professionals, paediatric and adult specialists, and patient representatives came together in Ljubljana to address one of the most critical phases in healthcare: the transition from paediatric to adult care.

Together, we explored:
🔄 Transition models, readiness, planning, and care continuity.
🗣️ Effective communication strategies with young people and their families.
💻 Digital tools and interactive workshops to translate theory into daily clinical practice.

A heartfelt thank you to our outstanding faculty, dedicated participants, and speakers for the extraordinary energy, passion, and active engagement throughout the course!

📚 The journey doesn’t end here!
Participants will now continue with the 6-week virtual learning programme, featuring interactive case discussions, peer exchange, and dedicated mentoring. Together, the in-person and virtual components make up the full course, EACCME®-accredited for up to 21.0 European CME credits (ECMEC®s).

Let’s keep working together to build seamless, continuous, and patient-centred care pathways across Europe! 💙

🔗 Learn more about our Task Force and ongoing initiatives: https://reconnet.ern-net.eu/ern-reconnet-task-force-transition-of-care/

23/10/2026

🌟 Day 2 of the ERN ReCONNET Transition Training Course is underway!

Today in Ljubljana, the focus moves from theory to practice: Transition Care in Practice.

Today’s sessions explore:
🔄 Transition models, readiness and planning
💬 Communication with young people and families, including sensitive topics
📱 Digital tools and interactive workshops to put skills into practice.

Because a successful transition is not just about transferring care: it is about listening, planning together, and building trust with young people and their families. 🤝

A big thank you to our faculty and to all participants for the energy and engagement shown so far. Let’s keep going! 💙

🔗 Course details and full programme: https://reconnet.ern-net.eu/transition-of-care-course/

23/10/2026

🎓 ERN ReCONNET Webinar | Sjögren’s Disease (SjD)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“Research evidence and patient perspective on the impact of lifestyle factors in patients with Sjögren’s disease”

Can your lifestyle make a difference in managing Sjögren’s disease?
Physical activity, diet, sleep, stress, and mental wellbeing are more than details: they can shape disease progression and quality of life, complement pharmacological treatment, and empower patients to take an active role in their own care. In our upcoming webinar, we bring together the latest research evidence and the patient perspective for a truly holistic approach to the disease. Join us!

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 28th October 2026
• Time: 16:00 CET
• Target Audience: disease-specific
• Dedicated to: Sjögren’s Disease (SjD)
• ✍️ Registration: rb.gy/u50k95

🎤 Speaker: Dr. Suzanne Arends
🎙 Moderators: Prof. Gaetane Nocturne and ePAG Coralie Bouillot

⚙️ ERN ReCONNET SjD Resources: https://reconnet.ern-net.eu/disease-ss/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

22/10/2026

🚀 The ERN ReCONNET Transition Training Course starts TODAY!

Today marks the beginning of an extraordinary journey in Ljubljana
From 22 to 24 October 2026, healthcare professionals, paediatric and adult specialists, and patient representatives gather in Ljubljana, Slovenia, for the ERN ReCONNET Accredited Course on Transition of Care in Rare and Complex Connective Tissue Diseases (rCTDs).

The transition from paediatric to adult care is a critical, delicate phase. To meet this challenge, the course brings participants together around four goals:
✨ Bridging the gap between paediatric and adult healthcare systems.
✨ Empowering professionals with practical tools and mentorship.
✨ Fostering collaboration within an international, multidisciplinary European network.
✨ Integrating the patient perspective directly into clinical practices.

EACCME® accredited for up to 21.0 European CME credits (ECMEC®s), the course combines interactive, in-person training with a six-week virtual learning programme featuring case discussions, peer exchange and dedicated mentoring.

A warm welcome to all participants and faculty embarking on this journey today! Let’s build better, more continuous care pathways for young people living with rCTDs. 💙

🔗 Find out more about the course: https://reconnet.ern-net.eu/transition-of-care-course/

21/10/2026

🎓 ERN ReCONNET Webinar TODAY | rare Connective Tissue Diseases (rCTDs)

Don’t miss our webinar TODAY at 16 CET:
“How I handle my Raynaud’s phenomenon”

Event Details:
• Date: TODAY, 21st October 2026
• Time: 16:00 CET
• Target Audience: patients, caregivers, and family members
• Dedicated to: rare Connective Tissue Diseases (rCTDs)
• ✍️ Registration: rb.gy/32rgt3

🎤 Speaker: the ePAG Magdalena Ciupera
🎙 Moderators: the ePAGs Vera Guimarães and Prof. Maurizio Cutolo

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on rCTDs are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-info/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

16/10/2026

🎓 ERN ReCONNET Webinar | rare Connective Tissue Diseases (rCTDs)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“How I handle my Raynaud’s phenomenon”

Living with Raynaud’s syndrome: what is it really like, day after day?
In this webinar, we’ll hear a personal, down-to-earth story: the medications, the hospital visits, the invaluable support of nurses in treating digital ulcers, and the hand-warming gadgets tested to help prevent wounds. An honest conversation for anyone living with the condition, and for anyone who wants to understand it better. Join us!

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 21st October 2026
• Time: 16:00 CET
• Target Audience: patients, caregivers and family members
• Dedicated to: rare Connective Tissue Diseases (rCTDs)
• ✍️ Registration: rb.gy/32rgt3

🎤 Speaker: the ePAG Magdalena Ciupera
🎙 Moderators: the ePAGs Vera Guimarães and Prof. Maurizio Cutolo

⚙️ ERN ReCONNET rCTDs Resources: https://reconnet.ern-net.eu/disease-info/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

14/10/2026

🎓 ERN ReCONNET Webinar TODAY | Antiphospholipid Syndrome (APS)

Don’t miss our webinar TODAY at 16 CET:
“The management of reproductive health and pregnancy in Antiphospholipid Syndrome (APS): answers to the patients’ questions”

Event Details:
- Date: TODAY, 14th October 2026
- Time: 16:00 CET
- Target Audience: patients, caregivers, and family members
- Dedicated to: Antiphospholipid Syndrome (APS)
- ✍️ Registration: rb.gy/ui67nz

🎤 Speaker: Prof. Andreoli
🎙 Moderators: the ePAGs Pullen and Aguilera

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on APS are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-aps/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

08/10/2026

🎓 ERN ReCONNET Webinar | Antiphospholipid Syndrome (APS)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“The management of reproductive health and pregnancy in Antiphospholipid Syndrome (APS): answers to the patients’ questions”

Planning a pregnancy with antiphospholipid syndrome? What are the real risks, and how can they be managed safely?
Join our webinar to explore the questions patients ask most often about obstetric APS, from preconception counselling and pregnancy management to fertility, contraception and reproductive health. We'll look at hypertensive disorders of pregnancy, such as preeclampsia and HELLP syndrome, and what they mean for both mother and baby. We'll also cover long-term cardiovascular and thrombotic outcomes for women, the interplay between APS and lupus, and how children born to mothers with APS do over time. Throughout, we'll discuss anti-thrombotic treatment during and outside pregnancy in line with current clinical guidelines, with particular attention to bleeding risks.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 14th October 2026
• Time: 16:00 CET
• Target Audience: patients, caregivers, and family members
• Dedicated to: Antiphospholipid Syndrome (APS)
• ✍️ Registration: rb.gy/ui67nz

🎤 Speaker: Prof. Laura Andreoli
🎙 Moderators: the ePAGs Jamy Pullen and Silvia Aguilera

⚙️ ERN ReCONNET APS Resources: https://reconnet.ern-net.eu/disease-aps/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

07/10/2026

🎓 ERN ReCONNET Webinar TODAY | Connective Tissue Diseases (CTDs)

Don’t miss our webinar TODAY at 16 CET:
“Gender effects on pathogenesis and clinical progression in autoimmune rheumatic connective tissue diseases (CTDs) "

Event Details:
• Date: TODAY, 7th October 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals, patients, caregivers and family members
• Dedicated to: Connective Tissue Diseases (CTDs)
• ✍️ Registration: rb.gy/983198

🎤 Speaker: Dr. Emanuele Gotelli
🎙 Moderator: Prof. Maurizio Cutolo

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on CTDs are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-info/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

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