09/10/2026
🔹 Today is PANS and PANDAS awareness day. Unless you have experience of this condition, child there’s a good chance you’ve never heard of it.
🔹 For some families, the onset can be sudden. A child who was previously happy and themselves can experience profound changes in their behaviour, emotions, eating, sleep, thoughts or movements. Sometimes these changes can occur almost over night.
🔹 For parents, watching your child change so dramatically can be completely heart-breaking and utterly devastating for the whole family.
🔹 PANS stands for Paediatric Acute-onset Neuropsychiatric Syndrome.
🔹 PANDAS stands for Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections.
👉 Swipe for the main symptoms.
🔹 Not all children will experience all symptoms and experiences can vary widely.
🔹 For families experiencing this, everyday life can become incredibly difficult. School, friendships, family life, sleep, mealtimes and simple daily routines can all be affected.
🔹 And alongside the challenges their child is experiencing, parents can find themselves navigating a healthcare system where understanding, diagnosis and access to appropriate support for PANS/PANDAS can vary widely. Along with appointments, uncertainty, worry and the emotional pain of watching their child struggle.
💔 It can be an incredibly lonely and exhausting journey.
has a wealth of information and also runs a wonderfully supportive online community for parents.
🔹 For more information on the conditions take a look at panspandasuk.org
💗 Today, we’re sending love to every child and family navigating this incredibly difficult journey.