Children's Brain Tumor Project

Children's Brain Tumor Project But for families affected by them, every case is one too many. These family foundations and their supporters drive funding, advocacy and awareness for CBTP.

The community of families that participate in the Children's Brain Tumor Project is dedicated to finding new options for treating pediatric brain tumors by supporting research at Weill Cornell Medicine. The families who participate in the Children's Brain Tumor Project (CBTP) are personally invested in finding new treatment options -- and ultimately cures -- for rare and inoperable brain tumors in

children and young adults. These tumors, including DIPG, gliomatosis cerebri, and AT/RT, occur so rarely that they do not get the major funding or attention that research scientists need to find a cure. The CBTP is funded in large part by a network of families who have lost loved ones to these terrible tumors, or whose families have been threatened by such a diagnosis. Dr. Mark Souweidane and Dr. Jeffrey Greenfield, Co-Directors of the CBTP at Weill Cornell, have pioneered a neuroscientific paradigm using genomic sequencing and Convection Enhanced Delivery (CED). A Phase I clinical trial is testing the safety of using (CED) to deliver a low-toxicity drug cocktail directly to the tumor site. Bench researchers are using genomic sequencing to identify genetic mutations in each patient's tumor to identify the best drugs to combat them, and investigating new ways to stop tumor progression by blocking signals from bone marrow.

Sometimes making a difference starts with one simple decision: do something.You can create hope for children diagnosed w...
07/28/2026

Sometimes making a difference starts with one simple decision: do something.

You can create hope for children diagnosed with rare and inoperable brain tumors by starting your own fundraiser in support of the Children's Brain Tumor Project at Weill Cornell Medicine.

Whether you're celebrating a birthday, honoring a loved one, marking an anniversary, hosting a community event, or simply looking for a meaningful way to give back, your fundraiser helps advance groundbreaking pediatric brain tumor research led by Dr. Mark Souweidane and Jeffrey P. Greenfield MD, PhD .

Every fundraiser brings us one step closer to better treatments and brighter futures for children and families facing these devastating diagnoses.

Ready to make an impact? Visit the link to start your personalized fundraiser today: https://www.childrensbraintumorproject.org/2020/04/02/fundraise/

Some diagnoses are so rare, most people have never heard their name.Pineoblastoma is an aggressive pediatric brain tumor...
07/27/2026

Some diagnoses are so rare, most people have never heard their name.

Pineoblastoma is an aggressive pediatric brain tumor that primarily affects children and requires intensive treatment. Because it’s so uncommon, research and awareness remain limited—creating additional challenges for families navigating this diagnosis.

Stories like Nova’s are a reminder of why this work matters.

Help us continue raising awareness and supporting research. 💙

07/24/2026

Hundreds of runners, walkers, families, and supporters, including members of the CBTP, came together on June 13 for the 9th Annual Cristian Rivera Foundation Full Steam Ahead 5K, united by one mission: advancing research for children diagnosed with DIPG and other pediatric brain tumors.

We are incredibly grateful to the Cristian Rivera Foundation for their unwavering commitment to funding lifesaving pediatric brain tumor research. Events like the Full Steam Ahead 5K help make groundbreaking research, innovative clinical trials, and hope for families possible.

To everyone who participated, donated, volunteered, or cheered on the sidelines, thank you. Your support fuels discoveries that bring us one step closer to better treatments and, ultimately, a cure.

Special thanks to our very own Hailey Reisert, Rashi Rangaraj, Gloria Harper, and Teresa Pisani!

Together, we will continue pushing pediatric brain tumor research forward because every child deserves a future.

The NIH is currently seeking public comment on a proposed policy that would limit the number of Research Project Grants ...
07/23/2026

The NIH is currently seeking public comment on a proposed policy that would limit the number of Research Project Grants an individual can hold as Principal Investigator or Multi-PI at one time.

The proposal is intended to broaden funding distribution across investigators and institutions and is part of an ongoing evaluation of how federal research funding is structured.

Public comments are open through August 3, 2026.

📍 NIH public comment portal

As policies like this are considered, engagement from the scientific community helps ensure a strong and sustainable research ecosystem.

Learn more here: https://grants.nih.gov/grants/guide/notice-files/NOT-OD-26-086.html

Representation matters in research. A newly published study from investigators at the Children's Brain Tumor Project and...
07/21/2026

Representation matters in research. A newly published study from investigators at the Children's Brain Tumor Project and Weill Cornell Medicine explores how genetic ancestry may influence pediatric brain tumor outcomes and highlights the importance of more inclusive preclinical models.

As precision medicine continues to evolve, ensuring research reflects the diversity of the children it serves is critical to improving outcomes for all families.

Read more about this important publication in Cancer Research on our website: https://www.childrensbraintumorproject.org/2026/05/23/2026-cancer-reserach/

This study was made possible with the support of an Infrastructure Grant from the St. Baldrick's Foundation.

07/20/2026

A $100,000 research grant is helping move pediatric brain tumor research forward. 💛

A team at Weill Cornell Medicine has been awarded funding from the GC Global Consortium to advance research focused on diffuse pediatric brain tumors, including those often referred to as gliomatosis cerebri (GC). This collaborative effort aims to address some of the biggest challenges in understanding how these complex tumors grow and spread.

Made possible through the support of dedicated philanthropic partners, this work represents another step toward improving our understanding of pediatric brain tumors and developing better options for children and families.

Read more about this exciting research initiative and the impact it could have on the future of pediatric brain tumor care at the link: https://www.childrensbraintumorproject.org/2026/05/23/gcgrant/

AYJ Fund The Rudy A Menon Foundation

07/15/2026

Meet Hailey Reisert, our newest Rudin Fellow in Pediatric Neuro-Oncology! 🔬

Hailey joins the Children's Brain Tumor Project for a dedicated research year studying liquid biopsy development for medulloblastoma, the most common malignant brain tumor in children. Her goal? A future where a simple blood test could identify tumor subtypes, so kids could start the right treatment sooner and potentially avoid additional surgeries.

From competitive dance on Long Island to neuroscience at Duke to a future in neurosurgery, Hailey's path has been anything but ordinary.

Read her full story: https://neurosurgery.weill.cornell.edu/about-us/news-updates/student-spotlight-hailey-reisert-rudin-fellow-pediatric-neuro-oncology

07/13/2026

We are deeply grateful to the family of Jiovanni Luciani, whose legacy continues to make a difference in the lives of children and families facing brain tumors. Through the Gift From a Child Program, Jiovanni's tumor tissue was donated to our research lab, providing scientists with a precious opportunity to learn more about these devastating diseases and advance future discoveries.

Today, Jiovanni's photo hangs in our hallway as a daily reminder of the children who inspire our work and the families whose generosity helps make progress possible.

Thank you to everyone who supported this special fundraiser and helped honor Jiovanni's legacy. Every dollar raised helps fuel the research that brings us closer to better treatments and brighter futures for children with brain tumors.

🔗 https://www.childrensbraintumorproject.org/2026/06/30/jiovanni/

The future of pediatric brain tumor research depends on the next generation of physician-scientists. The Rudin Foundatio...
07/10/2026

The future of pediatric brain tumor research depends on the next generation of physician-scientists.

The Rudin Foundation Medical Student Research Fellowship in Pediatric Neuro-Oncology provides medical students with the opportunity to spend a dedicated year conducting research focused on pediatric brain tumors while working alongside leading investigators at Weill Cornell Medicine, Memorial Sloan Kettering Cancer Center, and The Rockefeller University.

Through mentorship, hands-on research, and interdisciplinary collaboration, fellows gain valuable experience that helps prepare them to become future leaders in pediatric neuro-oncology.

We're grateful to Jack and Susan Rudin and the Louis and Rachel Rudin Foundation for making this opportunity possible.

Interested in applying or learning more? Visit our website for eligibility requirements, application details, and deadlines.

🔗 https://www.childrensbraintumorproject.org/2023/07/13/rudin/

The way federal research funding is structured is currently under review, with proposed changes open for public comment....
07/09/2026

The way federal research funding is structured is currently under review, with proposed changes open for public comment.

The Office of Management and Budget (OMB) has released a proposed rule that would revise federal guidance for grants and cooperative agreements across agencies. The proposal focuses on updates to transparency, oversight, and administrative processes within federal funding.

Because federal research funding plays a critical role in advancing biomedical discovery, these proposed changes are an important development that will negatively impact the broader scientific community.

Public comments are open through July 13, 2026.

📍 Submit comments at regulations.gov (Docket OMB-2026-0034)

🔗 https://www.federalregister.gov/documents/2026/05/29/2026-10817/regulation-for-federal-financial-assistance

Address

525 E. 68th Street, Box 99
New York, NY
10065

Website

,

Alerts

Be the first to know and let us send you an email when Children's Brain Tumor Project posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Featured

Share

Category